Mood Change to: BAD (reason)
August 15, 2008 7:47pm
I had been suspecting something was a little off lately when, my off-again, on-again girlfriend wasn't responding to those messages (usually just …
LongieWithCrohns’s Profile
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About Me
26 y/o, male, Longshoreman, suffering from Crohn's since 2000. Have tried MOST things, and am MORE THAN WILLING to share my experiences to HELP THOSE SUFFERING from CROHN'S and COLITIS!
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Recent Activity
Wednesday
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LongieWithCrohns replied to chronie4life’s discussion post Remicade in the Crohn's Disease & Ulcerative Colitis support group 7:00pm
Chronie, Check your messages... I replied. And in the meantime... while you were on Remicade for the…
Tuesday
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LongieWithCrohns gave dfever a Hug 11:54pm
Hi Debra! How are you doing?…
Monday
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LongieWithCrohns and madferrit are now friends 3:39pm
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LongieWithCrohns replied to aedammair’s discussion post Chron's and Antidepressant's in the Crohn's Disease & Ulcerative Colitis support group 6:51am
To ALL, This is very personal, but am willing to share my information with you all. About two weeks ago,…
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LongieWithCrohns replied to ZenEm’s discussion post Slippery Elm in the Crohn's Disease & Ulcerative Colitis support group 6:43am
I had posted a list of great vitamins and herbs to take (and to look into) for improvements with our…
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Journal
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Hugbook
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hi
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Thanks for the information.
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Hug
hi Nick!! So sorry it's been so long- no internet due to problems!! Its drove me insane missed you all!! Hope your doing well on your remicade it just wasnt for me but the Humira seems to be doing the job, dont feel even 50% myself but getting some of my life back cos i'm not constantly on the toilet or in bed crying in agony! How are you getting on? Hope all is well in the love department or you've moved on to better things. Adding you as ,my friend as i should have done ages ago take care x
Celebrate
hope you have some time off this three day weekend.
Hug
hey, how are ya doing> hope work does not have ya too busy.. any fun plans this weekend?
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Photos
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
26 y/o, male, Longshoreman, suffering from Crohn's since 2000. Have tried MOST things, and am MORE THAN WILLING to share my experiences to HELP THOSE SUFFERING from CROHN'S and COLITIS!
Treatments
- Asacol Working / Worked
- Mesalazine and Rowasa enemas.... very embarrasing. NOT painful at all... directions are once before bedtime (HOLD AS LONG AS POSSIBLE--> UNTIL MORNING...) which only turns out to be like 30 minutes... 1 hour if I'm lucky.
- Avoid Certain Foods / Chemicals Working / Worked
- Lettuce, salads, and all other vegetables that I normally would eat. Grapes (skins), carrots, nuts... as I do not process these very well...
- Azathioprine Working / Worked
- Dr. wants to start me on this drug very very soon... pending blood work to see if my body produces the enzyme needed to USE this drug.
- Azulfidine Working / Worked
- Dr. prescribed this BEFORE I had my L. intestine removed in 2000. I don't remember seeing or feeling any improvements....
- Dietary Modification Working / Worked
- LESS 'flavored' foods, and more bland foods. LESS FIBER!! Horrible feeling with FIBER. More breads.
- Entocort Somewhat Helpful
- Switched health care plans in around 2004-05. New Dr. prescribed this to me, I notices a slight difference in 'symptoms'.... but not anything significant worth writing more about - - then again, I didn't take it more than 3 months.
- Flagyl Working / Worked
- I don't notice much of a difference, except in LESS GAS (pain, pressure, bloating, and gas pain)... and a bad bitter taste left in your mouth if you take more than a second to swallow that bill. 500mg, 4 x daily as needed
- Lomotil Working / Worked
- Helps control the frequency of running to the restroom
- Prednisone Working / Worked
- Helps with inflammation in the bowel, therefore causing less trips to the restroom
- Probiotics Working / Worked
- Yogurt with Cultures, accidophilus, etc, etc.... tried them all... GARDEN OF LIFE Primal Defense, etc... ANYTHING 'GARDEN OF LIFE' (GOOGLE it!)
- Remicade Working / Worked
- REMICADE was by far the best treatment for my Crohn's
- Surgery Working / Worked
- L. inestine removed in 2000, reversal surgery later that year. 'pouch procedure' done, with occasional 'flare-ups' from Crohn's
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Snapshot
Recently …
- 1 hug given
- 5 hugs received
- 8 discussion replies
