You...You Broke My Dipstick
April 21, 2008 2:53pm
Why does everything always seem to happen at once? We all know the feeling. When one thing happens …
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FridayThe13th’s Profile
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FridayThe13th
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About Me
I'm Simon a 26 year old guy who was diagnosed in October 2007 with Von Hippel Lindau and had a tumor removed from my spinal cord.I'm currently awaiting treatment for my kidney cancer which was caused by VHL.
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Journal
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I itch you like crazy
April 19, 2008 6:45pm
I'm losing my mind. Not that there's much to lose. I'm not sure if it's poison ivy, a reaction to the …
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The Kindness Of Others...
April 17, 2008 6:23am
I just wanted to write a little bit about something great that happened to me that I failed to mention in my last …
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Round and Round we go...
April 17, 2008 5:55am
Wednesday was a day of going here,there,and everywhere. First my girlfriend and I went …
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Recent Happenings
April 16, 2008 12:08am
My first journal entry and I'm glad I'm actually in a really excellent mood today.Went to see my new Phycologist (sp?) today and he's …
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Hugbook
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GOOD LUCK
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Hi! I am so sorry to hear everything you are going through. I do have an answer that will hopfully get you to the hospital im Maryland. Angel Flight a charitable organazation that provides no cost transportation to children and adults who need treatment, but can't afford to get there. Here is the web site name www.angelflightne.org or call Angel Flight call 1-800-549-9980.
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How are you doing? It's been a year since my Dad had his left kidney removed and he's doing pretty good, bummed that he's still not able to ride his Harley but other than that he's pretty good. I was reading your journal note about the paranormal interest and I too am fascinated with the supernatural. Take care!
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That is just amazing to hear. Keep me posted. My husband has RCC and diagnosed with two tumors that were radiated at T6-7. It has been 15 months for us and he is now on Sutent.Joan
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Photos
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Support Groups
Close von Hippel-Lindau Disease (VHL)
Well I was diagnosed with VHL in October of last year when they found a hemangioblastoma that was connected to the right side of my spinal cord and attached to the base of my brain.I have been recently diagnosed with kidney cancer caused by my VHL.
Close Renal Cell Carcinoma (Kidney Cancer)
Recently found out I have RCC as a complication of VHL.
Open Transgender
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