I just need a moment.
April 27, 2008 11:03am
I just need a moment to vent. My kids have been absolutely horrible. It doesn't matter what I do for them, they are never …
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nhumphrey’s Profile
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nhumphrey
is feeling OK
About Me
A mom of 2 beautiful children. I'm a CNA/Unit Clerk at a wonderful rehab center. I am married to a wonderful man who works very hard to support our family. My philosophy is that you cannot control the world around you, you can only control what you do for the world. I am passionat about my family, friends, and my work. Nothing is more satisfying to me than making my children, my husband, or a lonley resident smile and say "thank you for you for spending time with me".
Interests
Nothing really interests me now. I am so worried about both of my children. I seem to only be able to accomplish the neccesaties.
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Journal
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Todays the first day of my new life!
April 20, 2008 2:35pm
I have been busy on this website. So far I have joined two groups and made one of my own. This site gives me some peace and time to …
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Hugbook
Hug
Thank you for your kind reply to my post. It helps so much to know that someone truely understands, it gives me strength to face the seizures head on. Thinking of you and your family. xxxxxxxxx
Hug
heya hun hope you feel better soon :-)
Hug
What meds is she on? When I was a child mysoline did the same to me.Get meds adjusted before you can't conrol her.I ended up in foster care and institutions.IM me sometime
Flower
Just wanted to send you some flowers. I had written a long reply to your post in stress management but it didn't save..arrgghh!! Anyhow, I will re-type it soon. I need to fix dinner for the kids. Lots of hugs and prayers.
Hug
Thanks for the hug! I want you to know that if I remind you of your daughter's situation, that with the love and support of my mom, I was able to make it through most of my life not even having to deal with discrimmination. My mom told me that there was nothing I couldn't do, and just to prove society wrong I usually went and did things they didn't think I could. Just more difficult now, when trying to get a professional degree, because of all of these pressures I am facing. Thanks for your support!!
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Goals
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Support Groups
Close Epilepsy & Seizures
March 2007, My then, 2 yr. daughter was diagnosed with complex part.seizures. My family's world came crashing down. she was haveing 30+ a day. She has been on 3 diff. regimins of meds. They have reduced drastically, but she still cont. to have about 2,3/day. She is not the same little girl. Her behaviors due to the seizures and the meds are out of this world, causing tension with my husband and me and our 7 yr. old son. Now that we have tried several meds, the doc. is suggesting surgery.
Treatments
- Depakote Working / Worked
- Taking this in conjuction with Dilantin. Same side effects. She's just not my loving little girl anymore. She is mean and is very disobediant.
- Diastat Somewhat Helpful
- Helped her sleep, but only held off the seizures for about 3 to 4 hours.
- Dilantin Working / Worked
- She is still taking this drug. It has reduced the amount of seizures to about 2 or 3 a day. Just worried about long term side effects. She is very hyper on this drug.
- Keppra Not Working
- Did not touch the amount of seizures she was having. Horrible side effects. She became very mean and could not sit down for even 5 min.
- Klonopin Not Working
- I believe that they made her have more seizures. While taking this, she always had huge dark circles under her eyes.
- Trileptal Not Working
- Controlled the seizures but she came down with a horrible rash from this drug.
- Prayer Working / Worked
- My daughter is now on the international prayer list thanx to a wonderful lady. Her seizures have decreased dramatically. PRAYER WORKS!!!!!
Close Stress Management
I am going through a really stressful time right now. My daughter has epilepsy and there is talk that we may have to have surgery. Dealing with my 7 year old son is a constant battle. He refuses to listen to anything I say and has temper outbursts that are out of this world. I just got my hours cut at work and don't see how I'm gonna make ends meet. Plus my Husband and I aren't on the best of terms.
Treatments
- Music Somewhat Helpful
- Helps for a little while.
- Patience Not Working
- I don't have any patience left!!
- Psychotherapy Too Soon to Tell
- Just started counseling. I have only had one session. I felt better afterwards but its really too soon to tell.
