hopesrising’s Profile

Close Non-hodgkin's Lymphoma
Type: Low Grade Non-Hodgkin's

One Sept 29th of 1997 I had facial surgery for what they thought might be a adreno carcinoma of the Parotid Gland. They were way off. I had a total parotidectmy as well as facial nerve reconstruction. They told us the day of my surgery that they thought it was lymphoma due my lymph node involvement as well. The wanted to be sure on the cell. I have small lymphocytic b cell lymphoma stage 4. (small cleaved, follicular malt/mucosa and mantle cell) Due to BM problems Aggressive.

Treatments

Fludara Working / Worked

I had Fludarabine in 97. It cleared up my bone marrow issues but I still had an area around the adrenal gland area. I was in partial remission till 2000. Side effects thinning hair, nausea that was fixed with Zofran and Kytril. My biggest issue was that it knocked the heck outta my white counts. Enough to get a ton of neuprogen to get though chemo.

Rituxan Working / Worked

I was in a clinical trial of Rituxan with Leukine. Leukine is a gm-csf and they were studying if with Rituxan used with it would halt stage 4 disease. I had this in Aug.of 2001 and have been clean since. The area of the adrenal glands was pristine. I also had an area near the pancreas and lower bowel that showed no trace.