General information that may interest you
Hiya everyone You may or may not be aware but I and both my children have neurofibromatosis which is a genetic condition. A good friend of mine has a …
is feeling Good
Another day at work :(
I suffer from depression, anxiety, up & down eating disorder and neurofibromatosis. I was diagnosed with neuofibromatosis (NF) when it was discovered my eldest had NF when he was 1 years old. I have two children named William (7 years)and Kieran (2½ years). Both have NF. William is mildy affected (touch wood will continue this way) and Kieran has pseduarthrosis of his tibia, which could result in amputation or life long operatons. I would never change them for the world. What will be will be.
Gardening and my children!
chillpill replied to shortsagitarius’s discussion post well for all who are wondering in the Neurofibromatosis support group 12:13pm
Your new mantra, you are funny. Do you think it could be RSI from typing?? Just a thought and probably…
chillpill gave frailone a Hug 9:31am
Sending you lots of hugs. Everything will turn out just fine.…
chillpill replied to frailone’s request for advice about controlling husband in the Physical & Emotional Abuse support group 9:31am
Welcome to DS you will meet lots of lovely caring people here. We are all here to support and hug each…
chillpill gave aaig a Hug 9:10am
Sending you a hug and hoping that everything is ok - Wendy…
chillpill replied to Hazi’s discussion post Telling New Partner About Abuse in the Physical & Emotional Abuse support group 8:56am
Hiya, I also agree that you need to trust your instincts and I agree with what others have said here.…
chillpill replied to ADancingGoalieA’s discussion post Stop Me Please in the Eating Disorders support group 8:49am
I also understand how you feel, you are def not fat and I bet you are a wonderful dancer, concentrate…
chillpill wrote a discussion post in the Parenting Toddlers (1-3) support group: Toys - does it matter boys or girls 8:28am
Hiya everyone Just now I phoned home cos I am expecting a few parcels and my other half said there was…
chillpill replied to mony123’s discussion post Positive in the Eating Disorders support group 5:55am
Hiya you have done great, just take things slowly and your positive feeling will stay with you. Well…
chillpill replied to shortsagitarius’s discussion post well for all who are wondering in the Neurofibromatosis support group 5:30am
Sending you lots of hugs, is there any way you can get a second opinion? It seems so wrong that if you…
Hiya everyone You may or may not be aware but I and both my children have neurofibromatosis which is a genetic condition. A good friend of mine has a …
hugsssssssssssssssssssssssssssssssssssssssssssssssssss and lovesssssssssssssssssssssssssssssssssssssssssssssssss
sorry for the awful time you had heres a hug for you and your children
Just because....
no no, i meant that when i WAS working there i received partial unemployment because they had already cut my hours so low, i had to apply for PARTIAL Unemployment because i needed money for bills, etc., but now that they fired me, i am afraid that if i tell the unemployment office about it, they will stop paying me, which is why i was asking if i tell them about me being terminated because of missing a meeting, will they stop payments. does that make sense?
hugsssssssssssssssssssssssssssssssssssssssssssssssss and lovesssssssssssssssssssssssssssssssssssssssssssssssss
Diagnosed with NF at the age of 31.Have two children both with NF.
Disabled child