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  • Image of jrmom

    About Me

    I am a 50 year old mother, grandmother, registered nurse, who is presently a primary caregiver to her mom who has End Stage Lung Disease and Dementia, which keeps me pretty much homebound and not much time to myself. I also am disabled with Systemic Lupus, MRSA, degeneraive joint disease, spinal stenosis, and rheumatoid arthritis.

  • Recent Activity

    Yesterday

    • jrmom replied to JEAN97’s discussion post WHEN A CAREGIVER IS SICK? in the Caregivers support group 11:18pm

      I have had some bad flares of my Lupus when I was taking care of my Dad before he died and now my Mom…  
    • jrmom gave cindykoe a Hug 11:09pm

      Thanks for the hug and your kind thoughts. Have a good day tomorrow. jrmom…  
    • jrmom gave JudyD3 a Hug 10:56pm

      Hi Judy. Hope we all have a restful night and you have a good day tomorrow. Comforting hugs sent to you…  

    Tuesday

  • Journal

    • WALKING AT 8PM EVERY NIGHT

      Mood August 7, 2008 2:40pm

      Have increased walking from two times a week to three or four times a week. Trying to work up to 1/2 mile every night in the evening before dusk when …

    • Getting Dad's items out of drawers

      Mood July 20, 2008 4:30pm

      It has been so hard the last year to even look at Dad's things and his room where he died. I am starting to get items ready to donate and get the …
    • I MADE IT

      Mood May 6, 2008 7:59pm

      I made it on Sunday. I took my Mom and met my sister and her family out at the National Cemetary where I have visited multiple times in the past 10 …

    • Saturday

      Mood May 3, 2008 8:22pm

      Mom has been very agitated and obsessive in her mood and actions last night and today. I have had to redirect her behavior most of the time. Tomorrow …

    Read Journal

  • Hugbook

    Give jrmom a hug

    • Hug

      From JudyD3 Yesterday

      Hi jrmom, I am so glad to hear you missed the storm. I will definitely keep you in my thoughts and prayers for the week. Take good care of yourself. Lots of hugs, Judy

    • Hug

      From cindykoe Yesterday

      May the love of God be always with you. I will say a prayer for youtonight. Cindy

    • Kiss

      From lavieenrose Tuesday

      Hi, jrmom! Not so relaxing, but FUN! Will post more...

    • Hug

      From harryswidow Monday

      I wanted so much to keep her here with me and my daughter was going to watch her when I was at work.She decided she couldn't so I had to do it. I still feel guilty but I have to keep working. Janet

    • Hug

      From barbs56 Monday

      Good luck to you. I will be thinking about you and keeping you in my prayers that all goes well with the hurricane. Take good care of yourself. HUGS barb

    Read Hugbook

  • Support Groups

    • Close Autism / Autism Spectrum

      I am seeking advice for my sister who is raising her twin 2 year old grandsons who are being evaluated this year for autism by a pediatric psych and a neurologist. I am seeking advice and support for her as she is very stressed and does not where to turn.

      Treatments

      Behavior Management Working / Worked
      unsure
      Brushing Therapy Working / Worked
      The twins fight this and it is very hard to do for very long.
      Early Intervention Working / Worked
      Occupational Therapy Working / Worked
      Unsure
      Play Therapy Working / Worked
      Tenex Not Working
      Just started 4-15-08
      Clonidine Somewhat Helpful
      Hyperactivity is better, but have noticed moodiness and increased hostility.
    • Close Alzheimer's Disease

      jrmom hasn’t entered any details for this support group.
    • Open Lupus

      I am a 50 year old registered nurse who has Lupus, degenerative joint disease and rheumatoid arthritis. I have been diagnosed for 9 years.

      Treatments

      Medrol Working / Worked
      Worked on severe pain
      Methotrexate Working / Worked
      Working to get my sed rate down.
      Plaquenil Working / Worked
      Keeping flares from being as frequent
      Prednisone Working / Worked
      ongoing but decreased dosage daily
    • Open Bereavement
      Type: Loss of a Parent

      I took care of my father for the last 5 years at my home when he became ill with emphysema and I got Hospice the last two years till his death 10 months ago. It has been so hard because he was a big part of my life and we were so close. My Mom has dementia the past three years, so I became her replacement for him in his dying days like staying in the hospital trips with him, and the emergency visits, she just was unable to be there for him, because of her memory and mood changes.

      Treatments

      Crying Working / Worked
      Keeping Busy Working / Worked
      Pets Working / Worked
      I dont know what I would have done without their love.
      Prayer Working / Worked
      Remembering Working / Worked
      Support from Friends & Family Working / Worked
      Support Groups Working / Worked
      Talking Working / Worked
      Time Working / Worked
    • Open Caregivers

      Caring for my 83 year old Mom in my home with End Stage COPD, breast cancer and dementia

    • Open Grandparents Raising Children

      My sister and her brother-in-law are raising their twin grandsons who have behavior and developmental problems. The last 3 years have been a nightmare for them.

  • Groups

  • Friends

  • Snapshot

    Recently …


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