Amazing!
September 13, 2008 5:07pm
Well, I finally did it! I finally got the help I needed! I'm on steroids, and they've helped immensely! I can walk, and talk perfectly, …
Goal Completed on Sep 13, 08
ZoyaByrket’s Profile
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ZoyaByrket
is feeling OK
About Me
I was diagnosed with Myasthenia Gravis October of 2007. It is currently under control, except my eye still droops occasionally. Also, I have Bipolar Disorder, which, unfortunately, is not under control lol. In fact, I think that since my muscle disorder has been handled, all the racing thoughts, and mood swings, and hypomania has actually gotten worse. So if you have any issues with Bipolar, I'd love to hear your story =]
Interests
Music, Writing, People in General. Also, I've been studying in Bipolar a lot, and plan on becoming a psychiatrist =]
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Recent Activity
- Sorry, there is no activity in the My Activity feed.
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Journal
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Journal Entry for August 2, 2008
August 2, 2008 7:11pm
Alright. I just got back from the Dallas Hospital about an hour ago... And I must say I've had quite the experience! …
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I Have Come To The Conclusion...
June 19, 2008 3:19pm
That sleep is way more important than I thought with this illness. So I got 3 hours of sleep the other night, because I just couldn't sleep …
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This is the most Amazing Illness I've Ever Experienced!
April 17, 2008 12:13am
so im sitting here typing, and my fingers are completely getting warn out .. like theyre getting really hard to hit the keys ... then out of nowhere …
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Hugbook
Prayer
I’m With You
I understand how you feel
Hug
I understand how you feel,I'm often confined to my home.On bad days my friends and family will come and visit me, though at first they were reluctant to,they were afraid they would be disturbing me, but I let them know that I welcomed their visits, that I needed their visits to remain in touch and not feel so cut off. Since then I have had more visitors and consequently feel like I'm still a part and that is a good feeling. Another suggestion, if I may, try to get out of bed if you can, it may take you awhile but it would be good for you. I try to walk everyday around the block, I walk 10 or 20 steps, stop and rest then walk some more, it takes me a long time but I do make it. If I can't walk the block, I walk around the yard and if I can't do that I walk around the house. Try my dear, you have to keep your muscles as much as you can! You are so young and have a lot of life to live, try with God's help to live and not just exist. Take care Zoya, Ken
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Hug
Hugs and prayer. I know a little about how you feel as I couldn't do a lot of things as a teen due to a heart condition. Can friends come see you when you aren't able to get out? YOu are in my thoughts & prayers. I am believing God will show you a way to live with your disease, not just exist. Love, Diane
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Photos
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Goals
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Support Groups
Close Myasthenia Gravis
I was diagnosed with Myasthenia Gravis last year, and its been a major trip, to say the least. I'm a lot better than I was last year, but I'm still not well enough to leave the house. Sometimes, I can't even get out of bed. I'm not sure what else to do, so I'll need some help. =]
Treatments
- IVIG Somewhat Helpful
- Well, I actually had this, and another pill I was taking, so I'm not sure if this or the pill had helped.
- Mestinon Working / Worked
- It works for the most part. Only it really affected my sweat=/
- Thymectomy Working / Worked
- It has definitely helped me in the long run.
Close Bipolar Disorder - Teen
I was diagnosed with Bipolar Disorder, though just got off some medication that didn't work. I have a psychiatrist, though haven't seen her yet, so I am not really treated, but I can see and acknowledge the symptoms, and what state I'm in at the time.
Treatments
- Music Working / Worked
- I listen to music a lot to calm myself down when I'm in a manic state, or depressed, or even hypomanic. It helps for the most part, or, depending on what I'm listening to, it makes it worse.
- Pets Working / Worked
- I have a cat, and when I pet it, it tends to calm me down.
- Talking Working / Worked
- I talk to my parents all the time about what I'm feeling [whether they want to hear it or not] and most of the time it helps me emotionally.
- Abilify Not Working
- I was on it for over a month. It made me mood swings ten times worse and it increased stiffness in my muscles I have a muscle disorder so it made that worse Ive been hypomanic for the past 2 weeks and my mood swings have been off the charts! I do not recommend this at all.
- Depakote Working / Worked
- I was on Depakote for a short time twice and both times it helped me. I was calm I could think straight my thoughts werent racing and I slept.
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Groups
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Snapshot
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