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  • Image of bedwards

    About Me

    retired principal;age 48; retired 4 years ago; mother of 3 (ages 31, 25,16) wife grandmother of 3 grandsons (ages 4, 3, 1); diagnosed at age 44; avid angler :) philosophy--enjoy life while you can; no day is promised. Major concern--illness is progressing faster than I can keep up.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for August 21, 2008

      Mood August 21, 2008 5:29am

    • Weight loss?

      Mood April 12, 2008 3:45am

      The scale is not my friend! I have actually gained about seven pounds according to my doctor's scale. He attributes it to the steroids. I have …
    • That darn casino!

      Mood April 3, 2008 9:53am

      I love the casino atmosphere. I don't necessarily have to be playing a lot of money, I just like walking around and playing the different …
    • A Day in the Life...

      Mood March 28, 2008 1:01pm

      I have been wanting so badly to find a support group online.  This is it!  I have been officially diagnosed since 2004, but actually I …

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  • Hugbook

    Give bedwards a hug

    • Hug

      From Nightangel01 July 23

      You're... My friend, My companion, Through good times and bad, My friend, My buddy, Through happy and sad, Beside me you stand, Beside me you walk, You're there to listen, You' re there to talk, With happiness, With smiles, With pain and tears, I know you'll be there, throughout the years! You are all good friends to me and I a am grateful to you. Send this to all your good friends online to show them you are friends. If you get this back from: 1 person - you are lonely 2 people - you have a couple friends, but not many 3 people - you have a few friends... 4 people - you have some friends... 5 people - you have several friends!! 6 people - you have many friends!! 7 people - you are SOOOO loved!!!

    • Hug

      From Nightangel01 July 22

      You are my friend and I hope you know that's true. No matter what happens I will stand by you. I'll be there for you whenever you need. To lend you a hand to do a good deed. So just call on me when you need me my friend. I will always be there even to the end. Forward this promise to all your friends to show your friendship and watch who sends it back.

    • Hug

      From Mailman33 July 12

      i'm with you on the ss disability, hugs pat

    • Hug

      From beautifulbrain73 April 26

      Good morning! How have you been? It's raining over here in North Jackson. I'm currently on steroids for a bad attack which has been going on over a week. Monday I begin physical therapy to help with running into walls and balance. I hope you have a wonderful weekend ahead. By the way, are you heat sensitive? If so download an application form from MSAA site to get some free cooling gear. I haven't used mine yet, but plan to test it out tommorrow since it's warming up now. Be blessed

    • Hug

      From Nightangel01 April 24

      INSTANTLY, WHEN YOU RECEIVE THIS PAGE, YOU MUST SEND IT TO AT LEAST 5 PEOPLE, INCLUDING THE PERSON WHO SENT IT! TO YOU !!! *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* *Hug**Hug**Hug**Hug**Hug**Hug* You have just been hugged! That's right, there's no getting out of it this time! This is the start of a full-scale Hug O' War! So hug everyone you know! With all the other forwards out there, I thought this would be a good one to start. The hug is my favorite sign of affection. It can mean so much, and many things at the same time. It can be a sign of love, support, caring, comfort or anything. So here you go. All I can say it will do is brighten someone's day. I mean, we all need a hug once in a while. So send this on if you'd like, to anyone who may need a hug,send it back to whoever sent it to you . Goodness knows, we could all REALLY use a hug sometimes. Soooo . enjoy your hug . . and pass one on to someone else . . . especially, someone that really needs one! Thanks .. God Bless you, your family, & your friends!!!

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  • Goals

    Progress

    0 %

    Current Weight (Lbs)
    273
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      I was diagnosed only four years ago, however I believe the illness was attacking me as far back as 15 years. I constantly had weird falling episodes and even loss of muscle control. Nerve conduction studies never revealed anything, but for years, there were no signs; they went away over time. I taught English for 15 years before becoming an administrator only to retire 7 years later because of the reoccurrence of this illness. My neurologist ordered an MRI which showed what he had suspected.

      Treatments

      Baclofen Somewhat Helpful
      made me sick after a while
      Beta Interferon Somewhat Helpful
      wasn't slowing the progression as much as expected
      Copaxone Too Soon to Tell
      just started a couple of months ago
      Neurontin Somewhat Helpful
      could not tell it was working until I stopped using it
      Physical Therapy Considering
      Prednisone Working / Worked
      weight gain on an already heavy frame
      Rebif Somewhat Helpful
      was not slowing the progression as rapidly as needed; typical flu-like symptoms
  • Friends

  • Snapshot

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