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  • Image of stampfreak

    About Me

    Hi all, I'm a married gal who is disabled with many ailments (Chronic Fatigue Syndrome, Fibromyalgia, Major back problems, asthma to name a few.) I am blessed with strong family and friends support. I also have a very strong faith that get me through EVERY day. The Lord has been sooo faithful in my life. No kids but two "fur kids" (dogs) that are our babies. I'm looking forward to chatting with you soon. If I don't answer you right away, I'm not a flake. Sometimes I'm in bed a day or two on bad weeks. It doesn't mean that I don't love you. :o)

    Interests

    Crafts, though right now I'm too sick to do many of them. Praise God for the Laptop computer!!

  • Recent Activity

    Sunday

    Saturday

    • stampfreak gave CathyBlessedGranny a Hug 12:33am

      Hi Cathy, I hope you're okay today. I'm in a funk since this morning the back surgeon says he can't help…  
  • Journal

    • Laptop is fixed, yayyy!!!!

      Mood July 13, 2008 9:29pm

      I'm back on-line baby!! 
    • Journal Entry for July 12, 2008

      Mood July 12, 2008 3:42pm

      Sorry all, I haven't been able to get on much because my laptop has been down. The thing that recharges the battery died so hubby taking me tomorrow …
    • Thew out my back

      Mood June 3, 2008 9:43pm

      Hi all, sorry if I haven't been online much lately.  Among all my other wonderful health gifts, I threw my back out Friday.  I already …
    • Chosing to feel blessed despite Chronic Illness

      Mood May 25, 2008 12:11am

      Hi all!  I haven't blogged for awhile...I'm thinking a lot today about the nature of chronic illness.  For me, chronic illness …

    • I'm back from my trip but still wiped out.

      Mood May 17, 2008 5:13pm

      Hi all, I'm back among the living! We had an awesome time on the Oregon Coast. We were rudely awakened by 100 degree temps when we returned--I …

    Read Journal

  • Hugbook

    Give stampfreak a hug

    • Hug

      From inpainalways July 7

      yeah, i know how it's hard to "fit in" normal things we could once do now that we have such hard pain. i still do not have insurance, so i can not afford any procedures or surgeries or anything. even the meds i'm on now do not help lately. the migraine is lifting, but there. at least i can get out of bed. of course i have so much laundry piled up and stuff to do after 3 days of pausing life, so the pain is cranked up. glad you got to see your family. and my ex's g/f had her baby, so i am tired of his "happy" news floating into my world. barf. he wants to "bring the baby" by. but of course asked the kids before me, so how can i say no? jerk. just reminds me of how lonely i am. no one wants to date or commit to a disabled woman. *grumble*

    • Hug

      From inpainalways July 7

      ah, i had a migraine the past two days, so no. not a great fourth. but my kids got to see the fireworks. but then my son sat next to a plant he was obviously allergic to, broke out in hives. i was *this* close to taking him to the ER, but what i did at home worked. except for the hives part, the kids had a good time, and that's what matters!!! how's my favorite twin doing??? how is your pain???

    • Hug

      From inpainalways July 2

      hey twin....nice to hear from you

    • Hug

      From thor7506 June 21

      You too!

    • Hug

      From thor7506 June 20

      ((HUGS))

    Read Hugbook

  • Goals

    Progress

    25 %

    Goal End Date is Jun 26, 08 29 days ago.

    Progress

    0 %

    Goal End Date is Oct 18, 08 85 more days.
    Current Weight (Lbs)
    178
  • Support Groups

    • Close Asthma
      Type: Adult Asthma

      I've had asthma since childhood. I'm well controlled now but doing acupuncture to get of meds.

      Treatments

      Accolate Not Working
      Stopped taking when I started SingulAir
      Advair Working / Worked
      This drug saved my life. I've been very well controlled with Advair.
      Albuterol Working / Worked
      This drug conflicts with my heart arrhythmia so I avoid taking it unless I have no other option.
      Flovent Working / Worked
      It worked but stopped when Adviar started.
      Serevent Working / Worked
      It worked but stopped when Adviar started.
      Singulair Working / Worked
      Works for my allergies too.
      Theophylline Not Working
      I took as a kid but conflicts with my heart problems.
    • Close Hives

      I have hives off and on all year long. Not sure what causes but suspect allergies and Nutrasweet.

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      I avoid Nutrasweet and that seems to help.
      Benadryl Working / Worked
      Benadryl helps best in the gel topical form.
      Promethazine Working / Worked
      I've used Phenergan for nausea--very helpful but have not tried for hives. Will keep this in mind.
    • Open Lactose Intolerance

      I've had lactose intolerance ever since I was diagnosed with Chronic Fatigue Syndrome

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      I try to avoid dairy when I can but I'm an ice cream freak.
      Lactaid Working / Worked
      Costco had a good Lactaid Ultra in their own brand. It works in most cases.
    • Open Back Pain

      Generally speaking, my back is "crap." I have DDD L4-L5 and L5-S1, and Stenosis L5-S1.

      Treatments

      Acupuncture Working / Worked
      This has worked better than anything else. I was able to stop the narcotics with help from acupuncture.
      Bedrest Working / Worked
      I spend most of the day on a recliner due to my back and CFS.
      Heat Working / Worked
      I've spent many hours with my friend Mr. Heating Pad.
      Ibuprofen Working / Worked
      I take 800mg 3x/day
    • Open Chronic Pain

      Hi there, I have bad back problems and fibromyalgia, among other things.

      Treatments

      Heat Working / Worked
      I spend many hours with my friend Mr. Heating Pad
      Marijuana Working / Worked
      I tried it but can't tolerate due to asthma. (I used a lot in high school but can't do anymore. I just cough too much.)
      Physical Therapy Working / Worked
      I've done several rounds of physical therapy but can't do it anymore due to my CFS.
    • Open Dizziness & Vertigo

      Hi all, because of CFS, I suffer from extreme dizziness and vertigo which makes me unable to drive.

      Treatments

      Antivert Working / Worked
      Works for the most part. I take it before anything that might agrivate my dizziness (movies, riding in a car, etc.)
    • Open Migraine Headaches

      Currently I have 2-5 migraines/month which I consider controlled.

      Treatments

      Acupuncture Working / Worked
      Just started this treatment.
      Maxalt Working / Worked
      This works most of the time. Insurance company only allows 9 pills/month so I try to stock up for months where I have more.
    • Open TMJ

      Hi there, I've had TMJ for several years. I use the mouthguard as often as I can but especially during stressful times.

      Treatments

      Mouthguard Working / Worked
      Works great when I use it.
    • Open Irritable Bowel Syndrome (IBS)

      I've had IBS all my life, though it was diagnosed about 15 years ago.

      Treatments

      Acidophilus Working / Worked
      I use before each meal.
      Colace Working / Worked
      I use for constipation.
      Imodium Working / Worked
      I use when I use too much Colace
      Probiotics Working / Worked
      See Acidophilus section
      Psyllium Working / Worked
      I use this most every day.
      Zelnorm Not Working
      I tried this but it didn't work.
    • Open Arrhythmias
      Type: Tachycardia

      I have Mitral Valve Prolapse and Mitral Reguritation and suffer from Arrhythmias.

      Treatments

      Corgard Working / Worked
      I had to stop this because it caused my asthma to flare.
      Diltiazem Working / Worked
      I was allergic to this.
      Verapamil Working / Worked
      This seems to work fine.
      Avoid Certain Foods / Chemicals Working / Worked
      I avoid stimulants and caffeine which helps. Also when I have palpitations I drink lots of water which helps.
    • Open Anxiety

      I've had anxiety most of my life and am glad to finally have good treatment.

      Treatments

      Acupuncture Working / Worked
      Just started
      Ativan Working / Worked
      works for the most thought
      Lexapro Working / Worked
      Also helps with my depression
      Psychotherapy Working / Worked
      Having a good counselor helps.
    • Open Insomnia

      I slept like a baby before Chronic Fatigue Syndrome, now I need drugs to sleep every night.

      Treatments

      Ambien Working / Worked
      Ambien CR gives me about 6 hours of sleep most nights.
      Ativan Working / Worked
      This helps get me back to sleep after Ambien CR wears off
      Lavender Working / Worked
      I LOVE lavender and use it for tea, air mist and pillow spray.
      Lunesta Working / Worked
      This worked for awhile but stopped working.
      Rozerem Not Working
      This didn't do ANYTHING for me.
      Trazodone Working / Worked
      This worked great for awhile but stoped working.
      Valerian Working / Worked
      I take this every day and helps.
      Melatonin Working / Worked
      This helps me fall asleep.
    • Open Depression
      Type: Clinical (Major) Depression

      I've struggled with depression for many years. Mostly related to my Chronic Fatigue Syndrome.

      Treatments

      Celexa Not Working
      This worked for ahwile but then my depression got worse.
      Effexor Too Soon to Tell
      Just started 6/2008
      Elavil Working / Worked
      This also helps pain.
      Lexapro Working / Worked
      This helps with both depression and anxiety
      Psychotherapy Working / Worked
      I see a counselor every 2 weeks who helps me deal with my chronic illnesses and disability.
      Support from Friends & Family Working / Worked
      I'm blessed to have a great support system.
      Writing Working / Worked
      I journal on bad days, am working to journal on good days too.
    • Open Codependency

      I'm a huge Co-Dependent, most of my life.

      Treatments

      12 Step Program Working / Worked
      AlAnon helped some.
      Celebrate Recovery Working / Worked
      This worked better for me since I'm a Christian.
      Talking Working / Worked
      Group meetings and counsling are crucial to me.
      \"Codependent No More\" Working / Worked
      This is a great book
    • Open Fibromyalgia

      I've had CFS for 12 years but Fibro is fairly new to me.

      Treatments

      Acupuncture Working / Worked
      Just started this week.
      Elavil Working / Worked
      This does help with the pain
      Heat Working / Worked
      Mr. Heating Pad is my friend.
      Vitamin B12 Working / Worked
      I inject 1 cc B-12 3x/week IM which helps energy.
    • Open Chronic Fatigue Syndrome

      I've had CFS for 12 years and recently went on disability for good.

      Treatments

      DHEA Working / Worked
      Have tested low so take a supplement.
      Lexapro Working / Worked
      Helps with depression related to CFS
      Psychotherapy Working / Worked
      Counseling is helping me to accept my illness.
    • Open Degenerative Disc Disease

      I have moderate to major DDD in L4-L5 and L5-S1. I've done physical therapy many times but now am too sick with CFS to continue. I'm trying acupuncture. I take Darvocet and Motrin for the pain.

    • Open Bereavement
      Type: Loss of a Parent

      I lost my father 5 years ago but sometimes it seems like yesterday. The grief process is a roller-coaster. Each loss brings back the pain of other losses (father-in-law, grandparents, aunts, etc.)

      Treatments

      Crying Working / Worked
      Sometimes out of blue I'll hear a song or have a thought that brings it all back.
      Helping Others Working / Worked
      Mom and I worked together after Dad died. She continues to volunteer though I'm too sick to at this time.
      Keeping Busy Working / Worked
      I stay busy on "anniversaries" and holidays. This helps some.
      Music Working / Worked
      There are certain songs that remind me of Dad or Father-in-Law that brings it all back. Sometimes I need that.
      Pets Working / Worked
      Mom got a dog shortly after Dad died. It gave her a reason to get up every day and has done wonders for her.
      Prayer Working / Worked
      I know Dad is with the Lord but I pray for strength for our family to cope.
      Psychotherapy Working / Worked
      This helps me on a number of levels.
      Reading Working / Worked
      I read a lot of books after Dad died which helped. One was "Death of a Father" but can't remember who wrote (I passed it along to someone else who needed it.)
      Scrapbooking Working / Worked
      I love papercrafts though right now too sick to do them.
      Support from Friends & Family Working / Worked
      I've been blessed in this area to have good support.
      Support Groups Working / Worked
      I found a great support group at my Mom's church that we attended for a couple of years. We met new friends that we still keep today.
      Talking Working / Worked
      It's very important to talk about it. Otherwise it doesn't improve.
      Time Working / Worked
      Each birthday, anniversary, holiday is a little easier to cope. I learned to deal with it over time.
  • Groups

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