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  • Image of julesvern

    About Me

    passion is water color painting. floral designed for over 30 years prior to TN. love God and very compassionate for people in pain. two sons lovely daughter in law and great husband. Have had atypical TN for four years.

  • Recent Activity

    July 17

  • Journal

    • Journal Entry for July 17, 2008

      Mood July 17, 2008 12:32pm

    • I'M SLOWLY CRAWLING BACK UP THE HILL

      Mood July 17, 2008 12:32pm

      alright now i am ticked off and i am gonna have to put on the boxing gloves to get my goal accomplished.

      so the day i am gonna start getting the first …

    • ramsay hunt update

      Mood July 2, 2008 11:31am

      still under the weather. could be as long as three months and then i will know maybe more what will be residual after this bout of ramsay hunt …

    • stormy weather

      Mood May 31, 2008 12:03am

      unbelievable fronts coming through indiana lately. which does nothing but turn up the pain. so i am anxious for summer to begin, rain to calm down …

    • pacing myself

      Mood May 26, 2008 12:31pm

      boy oh boy did i blow it this weekend. i had so much fun with my in laws here we went out for a nice dinner on friday night. then sat. we got …

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  • Hugbook

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    • Hug

      From ibflee Saturday

      p.s. the only reason i feel okay is because i have some viral infection with a fever and feel like i was hit by a mack truck. :o) otherwise i am great.

    • Hug

      From ibflee Saturday

      have a great weekend. i pray you can be pain free so you can enjoy the graduation. slow and steady is the course. you are getting there. no more quacking? :o) yesterday was my last day at my FT job. i have been working a lot at my per diem job. state came two weeks early to do their inspection. yikes! i am asking for a raise very soon because i have a lot of work to do and never expected to do this many hours. i start my new job on 7/28. i am very excited. it will be challenging, yet it fits what i am meant to do perfectly. i will keep you posted. i will journal on the splint again when i go this week. everything is great with that too!

    • Hug

      From patyomy July 17

      Thanks, Yes, kayaks unite!

    • Hug

      From aprilb42 July 14

      How are you feeling? I know that the shingles are really bad and people that haven't had them don't realize how bad they really are. I am so glad that you are getting movement back. It takes a while. I am still recovering. My right eyebrow still feels weird, but looks perfectly normal. I am still in pain though. Some days I am much better and others worse. I keep praying and do think eventually you heal. Please let me know how you are doing.

    • Hug

      From patyomy July 3

      Happy 4th!

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  • Goals

    Progress

    20 %

    Goal End Date is Jun 28, 08 27 days ago.
    Goal Completed on May 20, 08
  • Support Groups

    • Close Trigeminal Neuralgia

      Diag.2004 suffered with TN and ATFP. had symptoms for years prior to this thought it was sinus or migraine pain. had MCS surgery 2006 and this has allowed me to better control pain. now on maintenance meds and doing better than the last four years. it didn't cure it but gave me back function that was my goal. had to drastically change life to deal with this condition. find good doctors that listen to you!

      Treatments

      Nerve Blocks Somewhat Helpful
      helped for awhile but didn't work for front of face only back of head and neck where bulging disc was also flared up.
  • Groups

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  • Snapshot

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