Journal Entry for July 21, 2008
July 21, 2008 4:20am
Hello Whoever May read this :) Most probably think I have disappeared. Thank you for those that have left comments, hugs, messages and what have you. …
sunshine521’s Profile
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About Me
I am married and a proud mother of 2 awesome kids and been fortunate enough to stay at home with them. Pretty up beat out going person that loves life and having fun. Trying to adjust to a life with MS as positive as I can and take one day at a time and try to dodge any curve balls life has to throw my way. Lucky to have a great support system with my family and friends but nice to talk to others that understand more of what I go through and of course hopefully help others along the way! You can never have too many friends or support :o)
Interests
Music, all kinds but Aerosmith is my fav, love going to concerts, taking walks or bike rides when I can, enjoy poetry, painting, working in yard, spending time with family and friends and helping others, watch those crazy reality shows ..shhhh don't tell anyone:o) Also use MySpace sometimes if you have an account let me know :)
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Journal
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~~ONE DAY AT A TIME~~
March 24, 2008 4:14am
~~~~~ONE DAY AT A TIME~~~~~
I CANNOT CHANGE MY YESTERDAYS
THE THINGS I HAVE DONE FOR THOSE DAYS
ARE …
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This entry is private
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Hugbook
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BIG SPECIAL HUGS FOR YOU GERRI
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Do not feel bad, I haven't been giving out random hugs in I don't know how long. I'm glad you're doing ok, wish it was great, but we don't always get what we want. Take care and be well. Peace~
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HUGS BACK I'LL BE E MAILING U ...
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I'm glad you had a great time.We all need to do what you did.Stay cool and talk to you soon.Cheryl
Flower
Thanks darling you too! Take care of yourself.
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI am 36 and was diagnosed with RRMS July 2004. Talk about a roller coaster ride!! It definately comes with daily struggles but I try my best to stay positive and always tell myself "THIS TOO SHALL PASS" sometimes easier said then done but hey gotta try :-) I have 2 beautiful children that keep me going! I hope to meet more wonderful friends along the way to help keep us going!
Treatments
- Baclofen Working / Worked
- Xanax Working / Worked
- works...but do like klonopin better
- Adderall Working / Worked
- seems to help some with my fatigue as Provigil worked well but gave me too much anxiety.
- Ambien Working / Worked
- ACtually Ambien CR to help with sleep
- Baclofen Working / Worked
- Copaxone Too Soon to Tell
- Horrible experience , regret the first injection!!! Unfortunately I just had to start on these again since big changes in last MRI's hope it works better this time!!!
- Cymbalta Somewhat Helpful
- Was put on for depression and for my pain, ended up taking myself off of it though about a month or so again.
- Duragesic Patch Working / Worked
- They let me live a little!! Take 125 mcg every 48hrs, they make it more bearable most days. Best thing I found so far to help!!
- Epidural Injection Working / Worked
- Helps some with the arthritis I have developed in my tailbone and all my messed up discs
- Hydrocodone Somewhat Helpful
- actually use vicoprofen...use this along with Pain patches for breakthrough pain
- Klonopin Working / Worked
- been on this for years first for anxiety/panic disorder but works for that and also my spasticity.
- LDN - Low Dose Naltrexone Considering
- Worried about how we will control my chronic pain since I will have to go off my Duragesic Patches?? So confused and still considering?
- Prednisone Working / Worked
- awful side effects though and can we say marshmellow face :-)
- Provigil Working / Worked
- works well but had to go off of because raised my anxiety way too high
- Rebif Not Working
- body rejected it , was worse off on it then without it , brought out so many symptoms that I am still stuck with today
- Requip Working / Worked
- Seems to help with my RLS but makes me tired
- Seroquel Working / Worked
- put on to help sleep and relax
- Solumedrol Somewhat Helpful
- Caused a lot of sx that didn't seem worth it!
- Support from Friends & Family Working / Worked
- So thankful for the WONDERFUL support from family and friends don't know where I would be today without my angels :-)
- Xanax Working / Worked
- XR formula ..works...but do like klonopin better
- Promethazine Working / Worked
- seems to help most the time with nausea, just have to take highest dose and every 4 hours
- Antivert Working / Worked
- sometimes it does ,sometimes it doesn't
Close Chronic Pain
With combination of MS , arthritis and Fibromyalgia I suffer everyday with Chronic Pain
Treatments
- Duragesic Patch Working / Worked
- Started on 50 mcg but had to be upped to 150 mcg now and some days that just makes it bearable.
- Hydrocodone Working / Worked
- Helps some for the breakthrough pain.
- Epidural Injection Working / Worked
- never again!
Open Fibromyalgia
Was hoping I just had Fibromyalgia when I was going through testings for MS but got both deals instead :-)
Treatments
- Adderall Working / Worked
- Does seem to help with fatigue.
- Duragesic Patch Working / Worked
- Makes most days bearable.
- Xanax Working / Worked
- works but do like Klonopin better!
Open Parenting Teenagers (12-18)
I have a 12 yr old son and a 15 yr old daughter
Treatments
- Education (School) Working / Worked
- Patience Working / Worked
Open Insomnia
Awful to be sooooo exhausted but still not sleep...as you all know if you are in this as well...
Treatments
- Ambien Not Working
- Tried both regular and CR...just recently switched as wasn't working what little if any it did before
- Lunesta Too Soon to Tell
- Tried before ....didn't work and what a nasty taste!!! When they said possible side effect they weren't kidding. Just started taking it again tonight but as it being after 2 AM I am not too hopeful
- Restoril Not Working
- Just stopped this again after trying it after the Ambien CR and before Lunesta again...yuck!
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