xela080705’s Profile
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xela080705
is feeling Bad
About Me
disabled, 2 sons, 1 grandson, married 27 years, love music, reading and children.
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Support Groups
Close Migraine Headaches
Had Migraines my entire life; started having debilitating headaches in 1992 and went on disability.Could and can not function on a daily basis-was an A-type personality until this,which makes it worse-the not getting any better after all these years.Been to too many neurologists to count and to headache clinics across the US with no decrease in headache pain.Also suffer from TMJ,had previous surgery on both joints and going to have another,they say that will not take away all my headpain.
Treatments
- Amerge Not Working
- Aspirin Not Working
- cannot take aspirin due to blood clot disorder
- Avoid Certain Foods / Chemicals Not Working
- did not work,
- Axert Not Working
- did not work at all
- Botulin Toxin Working / Worked
- worked first time for few days
- Excedrin Somewhat Helpful
- at times, when nothing else works, this will, but rarely
- Fioricet Not Working
- did not work
- Imitrex Somewhat Helpful
- worked at first, maybe 3-6 months then stopped working
- Inderal Not Working
- Magnesium Not Working
- Maxalt Not Working
- Midrin Not Working
- Naproxen Not Working
- Topamax Somewhat Helpful
- 1st time relief for maybe a week, but pain level still a 4-5, never goes below 5 anymore
- Tylenol Not Working
- Zomig Not Working
Close TMJ
I have had TMJ problems for 20 year.10 years later had to have TMJ surgery on both joints.great for about a year.My migraine headaches continued to worsen to the level of disability and now my TMJ has gotten worse than it has ever been.Having splint made right now(upper and lower)but was told this was just a prelude for surgery on both joints again.No one seems to understand WHY I am going through so much pain and it is hard to find support except for my husband who is the greatest!
Treatments
- Bactrim DS Not Working
- Mouthguard Not Working
- The first mouth splint(computer made for my mouth and $3000) did not work, after 2 weeks, dentist said he could not help me anymore - I was too far gone??????
Open Deep Vein Thrombosis (DVT)
I had a dvt about 7 years ago, and it was huge, from my abdomen to my knee.I found out that I have a blood disorder that causes blood clots and now I have to take blood thinners for the rest of my life.I was told my vein was damaged pretty bad from the clot,just recently I can hardly walk on it after midday.It is unbearable and it hurts down to the bone.I am going to call my doctor today to see what kind of specialist I need. Keep me in your prayers and keep me in your good thoughts.Thanks, Xela
Treatments
- Coumadin Not Working
- Will have to take coumadin the rest of my life, have Lupus Anti-Coagulant Disorder and it has seemed to work pretty good.
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