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  • Image of tyrusp

    About Me

    father of 1 and need to spend more time home with dougter and wife

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    • Hug

      From mdlsal1 March 5, 2007

      hi, I wanted to check on you and your daughter, I am wondering how everything is going.

    • Hug

      From Iamthemom February 19, 2007

      my daughter who is 6 months old was dx at 2 months of age. If you ever want to talk I will be here. Because I know how hard it is! Hang in there!

    • Hug

      From Rocking4Epilepsy February 19, 2007

      Just wanted to brighten your day Hugs Jen http://dannyjr.proboards44.com/ind...

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  • Support Groups

    • Close Epilepsy & Seizures

      my daughter has between 40 to 100+ seizures a day 40 is a good day and 100+. The seizures last between 5 and 30 seconds where she jerks and stairs off slightly, but still consious(we can get her to smile, look at us, and cacle some times,while she is having them)my wife and I think they are Myoclonic+petitemall seizures. At birth the placenta riped and she lost around 50% of her blood causing her brain to swell. since birth her scull is now fused and we are despretly in need of knowlege.

      Treatments

      Trileptal Somewhat Helpful
      ever since my daughter has been home she has been on trilipital right now we are trying to adjust the dosage to get her to stop having the seisures
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