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  • Image of Sib1967

    About Me

    I have been living with p for many years and I have accepted both the good and bad. I always search for new ways to deal with it. Im married with adult children and a grandson (my passion) I also have a form of md-and and autoimmune problem. My md problem is mysthenia gravis and I really dont like it--I have been treated for it for 4 years and I now take methotrexate and it helps but the side affects are lousy. My hair is falling out and I loose 1-1/2 days out of the week. But, I try to keep my droopy smile

    Interests

    Reading, listen to all types of music, my grandson, and making new friends

  • Recent Activity

    Tuesday

    October 5

    September 30

  • Journal

    • a week goes by fast when your having fun

      Mood October 7, 2008 6:07pm

      So it has been a week since i last wrote in the journal---well i guess things have a way of getting away from ones self--------the methotrexate over …
    • why i choose cartoons rather then news

      Mood September 30, 2008 7:02pm

      so i sit here and watch sponge bob squarepants and i really can relate to him--first he overcomes many obstacles on a daily basis---and he does it …
    • Monday Monday

      Mood September 29, 2008 6:42pm

      You know the saying "you only get what you can handle" well i think i can handle at least a million dollars in one of my accounts or even …

    • Its Thursday March 13, 2008

      Mood March 13, 2008 6:52pm

      happy thursday----and it was a good day--first i woke up and second i was able to actually wash and dry clothes today----quite alot for me---i also …
    • Angry day Wednesday March

      Mood March 12, 2008 5:11pm

      Did you ever go to a bank and have to give all your id and still they wont cash your check. that happened to me today---i no longer look as i did on …

    Read Journal

  • Hugbook

    Give Sib1967 a hug

    • Thumbs Up

      From Eggman23 March 13

      Gotta keep on keepin' on. More power to ya. Ed

    • Hug

      From Eggman23 March 13

      Got it bad on my scalp- gonna try the Vick's Vaporub. Tried tar shampoo and tea tree oil. No luck so far. Thanks! Ed

    Read Hugbook

  • Support Groups

    • Close Myasthenia Gravis

      after alot of tesing (5 years worth) found out i have mg---i have the right facial droop and my face has a mind of its own-i get so tired all the time. now we think we have a mitochondrial disease also.i go to a md clinic in allentown pa thats run by the head of the als unit at drexel university-more tests then i knew existed. i deal with anger and depression, but i like to read so that helps-ive always been a happy go lucky gal and i miss it-married, 2 adult childeren 1 grandson

      Treatments

      Mestinon Not Working
    • Close Psoriasis
      Affected Areas: Psoriasis of the Skin

      psoraisis for 8 years--used it all but for some crazy reason vicks vapo rub has been working for 4 months im sure the daly will come when it wont. Im 58 female married 2 adult kids a grandson-i think if i were told that ice cream would help i would try it--also dealing with autoimmune and mysthenia gravis-we all love the flake in us dont we-

      Treatments

      Betamethasone (Topical) Working / Worked
      not
      Coal Tar Working / Worked
      not
      Dermarest Working / Worked
      no
      Dovonex Working / Worked
      no
      Hydrocortisone Working / Worked
      no
      Methotrexate Working / Worked
      no
      Phototherapy Working / Worked
      no
      Triamcinolone Topical Working / Worked
      Vicks VapoRub Working / Worked
      helping alot i have it on the front of my legs and elbows im no loner leaving a trail of the white flakesnot as much at least
  • Groups

  • Friends

  • Snapshot

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    • 1 group discussion reply

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