I feel like a grizzly bear. I am so angry. I am sick today and don't unserstand why. I did shot number 5 Tuesday night. I had very few sides on Wednesday. Some leg cramps and a slight headache but I was up at 6 a.m. and traveled 3 hours in to the city to see my nurse. I am disapointed in her because now I see she is very new to all this. I had to ask what my cbc blood works showed...I had to ask are my white blood cells down? or my hemoglobin low? I have this exttreme fatigue going on and now have a shortness of breath issue too! Why in the hell do they take viles and viles of blood out of me and do all these frigging tests if no-one is even looking at the results? It is really starting to piss me off!Grrrrrrrrrrrrrrrrrrrrrrrr! Why does my nurse not ask me have you been feeling out of breath or like your running low on energy! When you see blood work where WBS is low or the NEUT # is low should that not set of some alarms??? I feel like I deserve a better nurse and am thinking I might want to change. Am I just jumping the gun???I don't friggen know but I am getting tired of feeling like I'm a fucking mushroom! Being sick today is getting to me. I am worn right out. Yesterday I felt so good I couldn't believe it. Even the 3 hour trip home went well. I was telling my family how great it was too not be sick after an injection of that frigging poision! I was like ...wow this is great, maybe the worst is over. HAHAHA...never ever count your chickens before they hatch. Now I understand what people mean about taking it all one day at a time! I feel like crap today...need I say more... Grrrrrrrrr!
January 29, 2008 7:36pm
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Today I went to Boot Camp and it was a little harder than usual. Then I went to Chabot for my Emergency Response class. At the book store I saw a sign for the Blood Drive that was going on today so I went to it. It took about an hour to get their ...
January 31, 2008 6:51pm
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I am at that stage again in a very very defiant mood. I am sick to fucking death of doctors doctors doctors.Went for another ECG on tuesday and nurse tell me to wait a minute while she get the docs to check it over.I hear them all whispering then I ...
April 29, 2008 11:42am
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April 29, 2008 DH and I went for our blood test yesterday. The one to find out if we are compatiable or not. They took like 3 viles of blood for the test. Not much fun. I am beginning to think that I am a human ...
Well I would say that the 3 hrs trip triggered your feeling sick.
You will need to plan your outings, and expect that they do take a toll
on how you feel.
When they say listen to your body, well that's it, unless you have to go
somewhere I would recommend you saving your energy for important events
or outings.
As for your nurse, see most of this treatment hep c thingy's, is new to
even the doctors who didn't have patients on these meds.
I remember telling my new PCP that he better put his nose back into
his books if he were to treat me.
See what happens we have our dear informative support group, we learn
a lot more than any doctor will, by treating his patient.
The doctors and nurses in charge, have only one thing to check, that is
if you are in real danger according to your abnormal range of red and white cells, while on tx.
See they only check for that, they know the limit a patient can go on
being these meds, and the limit on how low the red cells are to be in
order to put you on proscrit, you can be very very sick think it's really
bad, but in the end if they don't think it's in a danger range, they
won't put your dosage down or put you on something to elevate your red
blood cell.
I remember going to see my nurse every second week, and telling her how sick I was and how I had a hard time to breath, that just taking a shower
took a tool on me, and it was all scary stories patients had already told
her, and it was perfectly normal.
So no point in wasting your breath on telling them this and that, they
will simply tell you it's normal. Don't worry they will tell you when
it's time to consider it dangerous, being on this treatment.
I remember once I had one of my good day, and was singing away, and
Richard told me, Mack save your breath (energy), lol.
How true, when you have a good day, we tend to over do it, and pay the
next day sometime more, so save your energy my dear.
One day at the time
Mckenzie
Mckenzie
As usual my dear Dr McKenzie said it all. I tend to be alot like you hun...1st of tx was pretty predictable but can change at anytime...also quickly learned about one day at a time and PACING myself (that was hardest for me). Now I just super enjoy my good days and kick back and be lazy on others. However, I know you are busy mom and it is harder. I just feel blessed that my kids are grown and I don't work. I have so much respect for those that do.
I also was suddenly extra tired and outta breath couple times..1st time nurse said go see primary probably bronchitis - she was right. 2nd time doc did CBC and thyroid test was looking for low WBC - nurse called and said all was good. She and I have great agreement that instead of waiting wks for lab to send me results she puts copy at front desk and I can pick up asap.
Keep copies of all your blood tests to study and coompare them. The last one I had showed I had low RBC, hemoglobin, etc but not too low so doc wasn't worried like McKenzie said. However seeing it let me know that I was borderline annemic so I got busy drinking protein drinks, etc. and felt better myself. My RN doesn't know how to answer alot of my ?'s so I just learn myself.
DS saved me at 1st - I knew more than docs so was able to change to one that listened.
Also I found that I was kinda taking it for granted how lucky I was w/feeling good most of week until it got worse then felt like damn is it going be this way rest of time...then stopped and thought hell I've just been lucky 1st 6 mos - if rest if bad then well that is just price I'm gonna have to deal with and feel blessed and enjoy every good day!
I pray that this will soon pass dear...keep me posted!
EllieMaeClampett
guess this unpredicable shit, can catch us out honey bunny!! sorry you had a bad day, tommorow will be better. Stay strong Lis xx
faithless
Awwwww....thank you my dear friends. Your comments have made me have a better day!
scaredRabbit
I came on here to see how you are and Im sorry you had a set back. I cant tell you how many of us have done this. One week I had the week from hell the next weekend I felt fantastic. One thing i have seen with my life is you have to keep it simple..simple bland foods..no trips that are stressful on you...I went out one Friday night (shot night) I normally go home after work and relax eat bland and stay very relaxed before shot. This one night I did something different It was a church thingy no less I stayed out late did the shot late the next day I vomited for 24 hrs...the only time....it could have been food related too yet since I have a set schedule and I dont stray from it. I have missed a few family events that have fallen on Sat......its just for now..its a short time in our lives and we have to be kind to ourselves. Dont try to be super women..itll get you. I work full time yet when I get home I do whatever my body says. If its real tired Im down If I have alittl left I do stuff. Anyway HAPPY MOTHERS DAY.......Ill pray that all this levels out and you have a praise report real soon..love you Canada.......New Jersey
dilew