Catalyzt’s Profile
-
-
Recent Activity
Today
-
Catalyzt replied to momzor’s discussion post Roll Call July 24th in the MCTD support group 3:10am
Hey, guys, just a quick shout before I tuck in to bed... Kristin-- you are a riot. I never let anyone,…
Wednesday
-
Catalyzt replied to MToennis’s discussion post Roll call July 23 in the MCTD support group 1:18pm
Good morning, everyone... mostly good or neutral news from y'all, glad to hear it... except for Momzor.…
Monday
-
Catalyzt replied to andrea73’s discussion post please help..need support .. in the MCTD support group 5:59pm
You and Dave will be in my prayers, Andrea. It is really tough when something like this happens when…
-
Catalyzt replied to jacqueline121’s discussion post mitral valve prolapse in the MCTD support group 12:51pm
Hey, Jaci, I have had pericarditis, but not this particular problem, I was told I had no valve damage…
Sunday
-
Catalyzt replied to dallas2’s discussion post roll call 20th of july in the MCTD support group 6:04pm
Hey, folks, Lisa-- sorry I got the timeline wrong on the tooth extraction! (And even sorrier this has…
-
-
Journal
Catalyzt hasn’t written any journal entries yet. -
Hugbook
-
Hug
Thanks for the message matt. I am a little better thanks. I will be in touch soon. I hope your feeling better. Take care
Hug
Hello,It's good to hear you are feeling better,me too! Hugs and Prayers,Lisa
Hug
Hi Cat, I just have to send you a hug for making me laugh this morning! Thank you and may remission truly be around the corner for you...and if it is, may you have no trouble finding which corner LOL!
-
Hug
hi matt, i hope your ok. You mentioned in one of your posts about taking prednisilone on alternate days. Does that make a difference? I take 10mg a day, should i take 20mg one day and miss the next? I would try anything that might improve my symptoms.
-
Hug
Hey Cat, I was touched by your post in the July 5th roll call...thank you sooooo much for your concern and for sharing my pain the way you do...please know that I am with you too!! Don't be mad at the world...it could be much worse. Good luck with the Miata deal...great taste, great style! Josée
-
Photos
Catalyzt hasn’t uploaded any photos yet
-
-
Support Groups
Close Deep Vein Thrombosis (DVT)
I had a massive ileofemoral DVT in 2004 after a skiing accident (my history of Lupus/MCTD was a contributing factor). It presented atypically, and was left untreated for over two months. I was pretty sure I would never ski or ride a bike again, and that I would be on blood thinners the rest of my life. However, with good medical care and physical therapy, I am off blood thinners and I can ski again at the same level, though I still have a lot of pain on some days.
Treatments
- Coumadin Working / Worked
- It worked, do everything your doctor says with diet, exercise and alcohol, it did make me feel strange at times, no big deal, activity restrictions are tough.
- Lovenox Working / Worked
- I was on it for 10 days. You get used to injecting yourself. Definitely do not drink to excess, this made me lightheaded. Have someone in the house the first few times you do the injections, they don't have to watch... it just makes you feel better not to be alone the first couple of times.
Close Parkinson's Disease
My mother has PD 15 years. I hate this disease more than almost anything I can think of.
Open MCTD
I was diagnosed with lupus back in the '70s before they had the antibody test, had high fevers and muscle pain and pericarditis, treated with steroids through my 20s, was able to go off them, DVT 4 years ago = sports injury + MCTD. Now my RNP (or anti RNA or whatever) is positive, my main symptoms are headaches and some muscle and joint pain-- symptoms have changed over 30 years! Very active, entertainment industry executive, black diamond skiier, but this can get scary and painful sometimes!
Open Bereavement
Type: Loss of a FriendI lost one of my best friends on February 2nd. We met in '78 and prowled the streets of New York for almost 30 years-- shot video together, played clubs together (and endless jam sessions) he hosted my bachelor party, convinced me to move to LA where I found my job and met my wife and he was really my Catalyst. He died of TCC-- really wicked cancer-- and I am finding that grief takes very unexpected forms.
Treatments
- Getting Angry Working / Worked
- Ski double black diamond slopes. Dangerous at my age and medical condition, have to be careful, I don't give a f*ck sometimes
- Keeping Busy Working / Worked
- Yes, it works, very important.
- Music Working / Worked
- Loud rock guitar, but reminds me too much of our great jam sessions
- Pets Working / Worked
- Couldn't get through without Z.
- Prayer Not Working
- Useless. Great for other things, save the big guy's help for when it's most needed, this is my thing I have to deal with.
- Psychotherapy Working / Worked
- Excellent. Warned me this would be bad so I was prepared, helps me with unintended consequences.
- Remembering Working / Worked
- Yes. Better with friends, coremembering I guess that would be.
-
Snapshot
Recently …
- 9 discussion replies
