lvnderangel’s Profile
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lvnderangel
is feeling OK
About Me
I'm a 40 year old married female. My husband and I met 4 1/2 years ago and got married 2 years after we met. I work full-time in retail. We have dogs and horses. I have 2 step children ages 17 and 15. Besides the animals I enjoy rubber stamping and scrabooking, Making Jewelry. My Husband was diagnosed with a rare genetic disease that mimicks a stroke. Multiple members of his family have had this disease and I am searching for more info or any possible people that have the same disease.
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Hugbook
Hug
well sweetie you bet I'll be your friend!!! Email me anytime about anything. Big hugs
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Hug
here's another just because
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No way You live in New Haven Missouri? I live in Warrenton Missouri
Hug
Welcome to the stroke group looking forward to learning more about you. Many hugs to you.
Prayer
May God bless you and keep you in perfect peace. Here are some encouraging healing bible verses to uplift you. Remember, faith moves mountains and you can get through anything in the name of Jesus. John 3:16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. Exodus 23:25 And ye shall serve the LORD your God, and he shall bless thy bread, and thy water; and I will take sickness away from the midst of thee. Psalms 6:2 Have mercy upon me, O LORD; for I am weak: O LORD, heal me; for my bones are vexed. Psalm 103:3-4 Who forgiveth all thine iniquities; who healeth all thy diseases; Who redeemeth thy life from destruction; who crowneth thee with lovingkindness and tender mercies. Isaiah 53:5 But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. Matthew 4:23 And Jesus went about all Galilee, teaching in their synagogues, and preaching the gospel of the kingdom, and healing all manner of sickness and all manner of disease among the people. Jeremiah 17:14 Heal me, O LORD, and I shall be healed; save me, and I shall be saved: for thou art my praise. Matthew 8:14-17 And when Jesus was come into Peter's house, he saw his wife's mother laid, and sick of a fever. And he touched her hand, and the fever left her: and she arose, and ministered unto them. When the even was come, they brought unto him many that were possessed with devils: and he cast out the spirits with his word, and healed all that were sick: That it might be fulfilled which was spoken by Esaias the prophet, saying, Himself took our infirmities, and bare our sicknesses.
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Support Groups
Close Stroke
Hi, I'm new to this. My husband has a rare genetic disease that affects only 10 families in the world that is known at this time. He was diagnosed last Aug. It's called Cerebroretinal Vasculopathy and mimics a brain tumor but signs of strokes are frequent. He is 41 and we have only been married 2 years. We are looking for others that may have the same disease. The family is very distant from each other and very little communication happens between them. We know that there are others with it.
Close Brain / CNS Tumors
Type: OtherHi, I'm new to this. My husband has a rare genetic disease that affects only 10 families in the world that is known at this time. He was diagnosed last Aug. It's called Cerebroretinal Vasculopathy and mimics a brain tumor but signs of strokes are frequent. He has Leisions on the brain that is affecting his speech.We are looking for others that may have the same disease. The family is very distant from each other and very little communication. We know that there are others with it.
Open Coronary Heart Disease
Hi My husband is 41 andwasjust diagnosed with CHF. He also has a rare genetic disease called cerebroretinal vasculopathy. the 2 together cause exteme weight gain and water weight. Since Aug 07 he's gained 45lbs.
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