SilenceonWheels’s Profile

Open Cerebral Palsy

i was born a spastic quad and learned to walk with braces & crutches when nearly 10 years old. my speech was slow to develop and was never any good. i was diagnosed with autism. these days I do not walk or talk at all and ppl are less likely 2 treat me as if i am retarded. i can only control 2 fingers on my rt hand. i recently totally lost the use of my left hand, it is just dead meat, and i want it 2 b replaced by a bionic prosthesis as i have some control over my left elbow and shoulder.

Treatments

Heel Cord Lengthening Not Working

it didn't help

Open Paralysis

i have a progressive form of spastic cerebral palsy. there is just about nothing i can do 4 myself.

Treatments

Acceptance Working / Worked

all u can do when nothing else helps

Open Amputees

my g/f is a congenital ampautee who was born without feet. fir many years she walked and oplayed sports walking and running on her stumps while wearing cusrtom made boots. my left hand is just a piece of dead meat attached 2 my arm and should b amputated asap.

Treatments

Prosthetic Device Considering

if my left hand is amputated i'd be a candidate for a bionic prosthesis. i am doing pt to increase the strength and mobility of my shoulder and elbow in anticipation of an amputation and then being fitted for a prosthesis.

Open Bipolar Disorder

for years i have had periods of feeling out of it and very far from the world. they used to call those periods catatonic episodes. my new pdoc thinks that i actually am bipolar.

Treatments

Lithium Considering

they want me 2 take this

Open Hand & Foot Abnormalities

the woman i will marry was born missing parts of both feet.

Open Self-Injury

my legs and my left hand r totally spastic and i have no control at all over them . . . they are in constand motion that i cannto stop. i still have normal feeling in them. i cut and burn my useless limbs that seem more like pieces of dead meat attached 2 my body than truly parts of me. when i self-injure my depression and the flashbacks from my ptsd are less.

Open Physical & Emotional Abuse

my parents could not accept that i was born disabled and would take away my leg braces and crutches and make me crawl around on the ground for days and days. they said that I was faking having cp and that if they made me do without the braces and crutches that i would learn to walk normally. i stil get flashbacks and nightmares about it

Treatments

Abuse Counseling Not Working

not at all helpful

Forgiveness Not Working

there is no way i can forgive my parents for abusing me

Group Therapy Not Working

didn't help at all

Leave Working / Worked

i live alone with 24 / 7 aids

Psychotherapy Somewhat Helpful

but not really useful

Open Post-Traumatic Stress Disorder

i still get nightmares and flashbacks of my parents beating me with my crutches and yelling that i didn't have CP but was faking it for attention. also of having to crawl around on the ground because they would not let me use my braces, crutches or wheelchair.

Treatments

Cognitive Behavioral Therapy Not Working

EMDR Not Working

Psychotherapy Not Working

Open Scoliosis

my g/f has scoliosis and a large hump.

Open Epilepsy & Seizures

lola convinced me that i should not be ashamed of my seizures so i am finally coming out of the closet regarding them. i have had seizures my whole life and have 1 or more most every day..

Treatments

Acceptance Working / Worked

The only thing that works when nothing else does

Depakote Not Working

could no tolerate it

Dilantin Somewhat Helpful

no matter how much i take i still have seizures

Felbatol Not Working

Keppra Not Working

made ne more nuts than i usually am

Klonopin Not Working

Lamictal Not Working

ended up on the burn unit of the hospital from a rash it gave me

Neurontin Not Working

like taking water

Phenobarbital Not Working

Surgery, Brain Considering

the idea totally freaks me out

Tegretol Not Working

low WBCs nearly killed me

Topamax Not Working

Trileptal Not Working

Vagus nerve stimulation Considering

this freaks me out 2 but not as much as the idea of brain surgery

Zonegran Not Working

Open Multiple Sclerosis (MS)
Type: Relapsing-remitting MS

my g/f has MS in addition to other disabilities . . . she now uses a powerchair full-time

Open Brain Injury

i was born with CP and autism and one theory is that i got them from having a stroke while being born. I have fallen on my head many times and the docs think i have had a couple of TBIs in addition 2 my other probs

Open Hearing Loss & Deafness
Type: Sensorineural (Moderate)

i can understand only about 10% of what people say or what i hear on the tv. it is an inability to understand speech as i can hear words but am having more and more trouble knowing what they mean. it is as if they are in some language i dont know. The docs say the problems in my brain not in my ears. i am learning lipreading and asl so ppl can communicate with me.

Treatments

Lip Reading Too Soon to Tell

Sign Language Too Soon to Tell

Open Shyness

i was born with autism so i am more than shy

Treatments

Acceptance Somewhat Helpful

i am what i am, and what i am is autistic

Open Kleptomania

i have bipolar disorder and when manic i become very impulsive and then i steal stuff