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  • Image of mroset

    About Me

    I'm a so called artist. At the moment I'm taking a year off study to explore other career options. I'm the youngest of 4 kids, 2 of them which are half brother and sister and other then my mum I am the only person in our family who has marfans syndrome.

  • Recent Activity

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  • Journal

    • Journal Entry for February 24, 2008

      Mood February 24, 2008 7:19pm

      I guess I should tell you a bit about myself. I'm an 18 year old girl born and raised in New Zealand. I was born with Marfan syndrome which I …

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  • Hugbook

    Give mroset a hug

    • Hug

      From CherieAmour May 24

      You are not alone fellow Kiwi. Come visit us at KIWIS FROM AOTEAROA, where you can meet like minded people from your own little neck in the woods! Love to see you there..HUGS Jo.

    • Flower

      From peg38 March 14

      Welcome to the site!!!

    • Hug

      From astaka75 February 24

      Welcome to the site. I hope it will help you as much as it has helped me. :)

    Read Hugbook

  • Goals

  • Support Groups

    • Close Marfan Syndrome

      I was diagnosed at birth with Marfan syndrome. My mother also has it but her case of it isn't as bad as mine. The symptoms I have are I have a mitral valve prolapse in my heart as well as a smaller aortic prolapse, i'm quite literally as skinny as a stick and am 6ft in height. I'm unable to put on weight and since i stopped growing at 14 I haven't put on any weight at all. I also have an unknown condition that they think could be pre-diabeties.

    • Close Anxiety

      I've suffered from an anxiety disorder most of my life which has lead to panic attacks and depression

      Treatments

      Breathing Exercises Working / Worked
      works very well whenever i start to get a little panic i breath and it goes away along with positive thinking
      Hypnotherapy Not Working
      was put on hypnotherapy as a young child but was unsuccessful
      Meditation Somewhat Helpful
      Positive Thinking Working / Worked
  • Friends

  • Snapshot

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