I wish everyone could be happy
March 3, 2008 7:44pm
Hi to the world. I wish everyone could be happy. So many of us live with difficult challenges, some more than others...At times we feel that we are …
mazel’s Profile
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About Me
writer, musician, mother of 4 traveling
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Recent Activity
December 23, 2008
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mazel gave kjc431 a hug 11:16pm
Give her a great big hug. A lot of people are praying for her......Jude…
December 22, 2008
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mazel replied to hamby03’s discussion post CO2 Laser for Neurofibromas in the Neurofibromatosis support group 2:00pm
What is this?? I have never heard of this technique. Is it being used already and does it work????????…
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mazel wrote a discussion post in the Neurofibromatosis support group: Israel 1:59pm
Next year my family is moving to ISrael and I was wondering if anyone here is familiar with doctors who…
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mazel replied to CrayolaQT’s discussion post Hi there in the Neurofibromatosis support group 8:04am
Welcome to the nf board. You are a beautiful person inside and out. If people stare know it is their…
December 20, 2008
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Journal
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Friday, February 29, 2008
February 29, 2008 8:11am
Hi everyone. I am starting to have a little anxiety because March is a bad month. My mom died in front of me 4 years ago on March 17th. And March 6 …
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Journal Entry for February 25, 2008
February 25, 2008 10:20pm
Hi Again. I am Jewish and I was wondering if there are other Jewish people with this illness. I am only asking because Jews with Ashkenazie …
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Journal Entry for February 25, 2008
February 25, 2008 9:48pm
Hi everyone. I saw Dr. Weinberg today and will have the surgery in 2 weeks. I usually have it done every couple of years. But now I am worried …
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Journal Entry for February 20, 2008
February 20, 2008 2:48pm
Hi I wrote a journal entry and then it disappeared. So I am hoping this one goes through. My name is Jude and I am a 40 year old married woman with 4 …
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Hugbook
Rainbow
Hope you are having a good week!!
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Hug
Hi how are you!!
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Hug
Thank You for the Welcome! Have a wonderful day!
Hug
this is cora (my pen name) my family does understand about my nf. it is the local doctors that dont care. i found one doctor and she started doing things but then she left for some strange reason. i hope that some day our condition will get better attention. because of the doctor ignoring this condition my son lost his leg to a nf tumor that turned malignant almost lost his life in 2007. hugs cora
Flower
thank you :) brightened my day.
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Photos
mazel hasn’t uploaded any photos yet
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Support Groups
Close Neurofibromatosis
I am a 40 year old married female with 4 children. I have nfi and have many tumors. Though I am considered mild, I still cannot wear long sleeves because my arms are covered in them. I feel alone since I live in a community where everyone is perfect. I have had many surgeries including a large one last year.I also have a lot of pain assoc. with it. I am a writer, musician. I am always bubbly in front of people to hide my pain. I feel as if I am the only person who does not have perfect skin.
Close Deep Vein Thrombosis (DVT)
Hi. I am a 40 year old woman with 4 children. I also have a tumor disease called nf.. I was having leg pain 10 days ago, and when I went for a test, a clot was discovered in my thigh.....I have undergone sooo many surgeries unrelated to this.. I do not think my mind can absorb having another medical problem.....
Treatments
- Coumadin Working / Worked
- I am currently taking 8mg of Warfarin.. I have no side affects as of yet....
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Snapshot
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