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  • Image of peg38

    About Me

    I'm 38 years old,and have Marfan Syndrome. My mom also has it. My hobies are: reading, knitting, singing, Teaching Sunday School, Clowning, Dollhouse Miniatures, Anything Crafty, and Studying the bible. We have 2 cats, a dog, and a Budgie (a.k.a a Parakeet). My philosophy is: " I wasn't handed a death sentence, I was handed a Life sentence!". Meaning, I as given a life. My other philosophy is: I'm "Living with, not dying from, disease." (Lyric from the musical RENT) My passion is Music.

  • Recent Activity

    July 15

    • peg38 commented on paatuncfan’s journal entry I'm SCARED to lose my DAD 1:30pm

      So sorry to hear about your dad. LOL about the guys, though. They just don't get it. I once told a guy…  
    • peg38 gave paatuncfan a Hug 1:20pm

      I'm with you my friend.…  
    • peg38 commented on paatuncfan’s journal entry I NEED HELP 1:18pm

      You are in my thoughts, and prayers my friend. I don't want to loose you. I've lost too many friends…  
    • peg38 commented on their journal entry Ticked off 1:12pm

      I'm feeling really great!!!! The doctor found nothing wrong with my bladder, or kidneys. I finally got…  
  • Journal

    • Ticked off

      Mood May 19, 2008 6:22pm

      I'm sort of ticked off, right now. I have to have a CT Scan on my bladder, tomorrow, and have to drink that lovely BARIUM!!!!! It really tastes …

    • BORED!!!!!

      Mood March 24, 2008 4:55pm

       Feel better than I did, still not great. i guess it's the after effects from yesterday. I still have the headache, just not as bad. …

    • Feeling horrible

      Mood March 23, 2008 6:43pm

      I'm not feeling too great, today. I'm hurting all over. I just feel like crawling in to bed!!!! My back, knees, and hands are killing me. I …

    • Very Happy

      Mood March 14, 2008 6:00pm

      Today, I'm just feeling very happy. I don't know why. Maybe it's because I just participated in a mass choir concert, and we really …

    • Journal Entry for February 19, 2008

      Mood February 19, 2008 8:47pm

      This is my first journal entry, so here goes. People always think that I am a strong  person, because I try not to let anything get to me. But, …

    Read Journal

  • Hugbook

    Give peg38 a hug

    • Gold Star

      From paatuncfan March 14

      you already a star, but here's another for trying to better yourself! pat

    • Hug

      From paatuncfan March 14

      omg, thank you for the bday wish. hope you are wonderful pat

    • Hug

      From paatuncfan February 19

      i just read that you have MARFANS TOO! omg, so i commented on your journal and hope to chat with ya sometime soon! pat

    • Hug

      From paatuncfan February 19

      that's really kind of you, thank you pat

    Read Hugbook

  • Support Groups

    • Close Marfan Syndrome

      I was diagnosed at the age of seven, but wasn't told about it until I was twenty-three, and having open-heart surgery. I think that the doctors wanted to spare me from the shock of the diagnosis. My mom also has Marfan. She was diagnosed at 72.

      Treatments

      Albuterol Working / Worked
      for my asthma and cronic broncitis.
      Coumadin Working / Worked
      I had 2 valve replacement surgeries and need to take blood thinner. The only side effect is bleeding.
      Metoprolol Working / Worked
      Its working and no side effects so far.
  • Friends

  • Snapshot

    peg38 hasn’t been active on the site in a while. Why not give peg38 a hug?

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