katiesmum's Journal

Katie has just celebrated her first birthday. Looking back on the year its been a year of alot of mixed emotions. After her tramatic birth and the discovery of her downs, then was the feeling that although i knew i could cope, but would my new partner. Which i can say, he has really well. Then there's been all the hospital, doctor and other appointments. Although that has settled down, wondered how we would ever have time for a life. But it has settled down and now its just part of our every day routine. Think the biggest part of this year was waiting for her open heart surgery, which she didnt have till 6 months old. Those 6 months were the hardest as she was not at all well. She had no quality of life. Any stress ment that she went blue and stopped breathing.Then the day finally came for her to be operated on. Having to hand her over in the operating theatre was the hardest thing we have ever had to do. Knowing that it should be ok but there was always a chance that it could go wrong. Then seeing her connected to all the tubes. And the only thing you can do is be there and pray that she pulls through. Luckily katie did pull through even though her recovery was slow. Now i look at her and the progress is amazing. She's so happy and full of energy. She no longer goes blue or stops breathing. And is making good progress. All i can say is that although its been a difficult year, its been well worth it. Just to see her smile, lights up our world. I can only thank god for giving us our precious angel.