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It is Monday -one day closer to my shot 19. Then down to 4 more weeks. I will order my last dose of meds today! It will feel good for sure.
So on Saturday we went to my 6year old granddaughters birthday party. There was a nice breeze, and an overall beautiful day. My dauthers MIL is a work that is for sure. I always say she had optical-rectalitus! A poopy (don't want to cuss) outlook on life. So she comes up to me and says in her nice encouraging and carring way...you haven't lost THAT much hair, followed up with "you really look pale". Wow, such nice things to say LOL...Felt so warm and fuzzy after that!
Anyone reading this post..here is some good advice. I always prayed for my kid's spouses, even when they were little...the advice is, also pray for them to have loving in-laws! I know Joni is going through the same stuff with her daughter's in laws-gotta keep all those people in prayer. Other then HER, the rest of the folks were friendly and caring. I will post some new pictures shortly.
I came home from the party so exhausted..just fell in my recliner and fast asleep. Yesterday, we went to see Batman. I was going to go see Mama Mia with a friend while my hubby was seeing Batman. but my friend ended up not going. So I went with my husband, did not want to see a movie by myself, and or be alone in my state of weakness. So to make a long story short, went with my hubby to see Batman and I LOVED the movie! I was really surprised at how much I did. I do most movies, but never was a fan of the Batman series, but really liked this one. Heath Ledger..boy he should get the Academy Award...you would never even know it was him! He did a great job of being a sinister character, even down to a way he would talk with his tonque going in and out...very creepy sounding and looking. So unless you absolutely HATE any kind of superhero movies, I highly recommend it.
Here is a mom funny...unfortunately, as I have stated before, I am built like a Mormon prairie women, totally take after my dad's side of the family. My mom on the other hand is like 100lbs wet. She always says weird things to me....she noticed I have lost some weight and my pants are sort of hanging on me. She says this " you know if you get some more weight off, you can come to my house and maybe wear some of my clothes" Now, if you know my mom, she was not so much reaching out to offer me her clothes, it was more of a reminder, how skinny she is! Even if I was anorexic and lost 100lbs, my body will never fit in a size 2 or 4 like her! I mean, my thigh would not even fit in those sizes. Besides, I would never wear her clothes anyway! LOL. She is one who always asks how I am doing, then says "I am glad you are doing so well" -no matter what you tell her HUH? Too funny....she really does not listen so much, as she then gauges her pain against what I am going through. She is totally a one up type person. It does not matter what I say, she is worse, and in more pain, or was up all night in pain etc....what ever. If you ever watch SNL...there is a character on there that twists her hair, says sooooooo.... and always one ups whatever someone says. If someone shares they were on a cruise, she will say, well I have been on 4 cruises, and I actually own all the cruise lines....anyway very funny character, and my whole family sort of say so................. when my mom starts down one of her one up on ya road.
So that was my exciting weekend...really...as most weekends, we are home, and I am resting more then doing things. Feeling good today...gonna make a nice dinner and might even bake something....I always LOVE to cook, and make stuff for my family...have not done too much of that for quite a while.
God Bless and Give You His Peace!
Comments
Thank you Lord, yesterday I was a bit down, blah...not much personality...just a basic bore is the way I would describe it. Of course God's timing is always perfect. When I was contemplating my navel yesterday-LOL my son called out of the blue. He wanted to share two jokes he had heard on the radio! Wow, I can't even remember them now LOL-but they were very funny, and lifted my mood. Then in the afternoon, I got a funny card from my cousin Frieda (wink, wink,). It was hysterical. I also got a cheery card from Thelma too!
Then another DS friend sent me some praise and worship cd's along with some instrumental cds...just love them, and have enjoyed them all morning. A few of the songs remind me of my kids when they were in High School and College. They sang in a couple of ministry type teams...so when I heard those songs...it brought memories back and a tears to my eyes, but a happy tears!
You never really know when a random act of kindness, or a simple joke, or a funny card can bless someone so much. Just getting a quick hug, or thinking about you message can go a long ways when you are home and by yourself...and need a little human contact, while still sitting in your jammies! My DS friends don't care if my hair is falling out, or if I am a bit cranky, tired, and just plain worn out. SOMEONE is always right there with a bit of encouragement, or much needed laughter!
Everyone of you will receive coupons redeemable in Heaven for all you do to share, encourage, pray and uplift others. Especially when you, yourself need the encouragement and uplifting, but instead of complaining you give of your self to others. THANK YOU!
God has all the details covered....I don't need to worry about anything...just get better and trust in the Lord wit hall my heart!
Mathew 22: 37-39
37 ...'Love the Lord your God with all your heart and with all your soul and with all your mind.' This is the first and greatest commandment.
And the second is like it: 'Love your neighbor as yourself.'
Everyone here does a fantastic job of loving your neigbor (DS Members) as yourself...this is where the coupons come in!
My heart longs to be back in church...I know in time I will be and will be trying to keep all my plates spinning! I sometimes feel like a horse in the starting area just before the open up the gates for them to race. I am just waiting for that gate to open! I just know, I will be back up and running full speed with a renewed spirit, mind and hopefully body in so many ways. I long to not be tired like the old days, or like right now LOL!
Looking ahead!
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Amen to such an inspirational journel and I too pray and ask God to please put his hedge of protection around us while we are at the end of this thing and barely able to dip into our reserves of positiveness. Lord protect Barb and me and all of our friends here and keep us all as well as can be and touch out minds and our bodies and heal us sweet Lord..I pray in your name above all others...amen...I am so glad God created friends.......
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We will all be spinning those plates again soon right? Right now I can only manage a couple of kiddie plates though and then I have to stop and rest. Lord please give us all the strength to endure this tx obstacle course.
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Thru many dangers toils and snares, we have allready come.
T'was Grace that brought us safe thus far
And Grace shall lead us home.
Truly, Truly, God works His wonders every day when we look for them. Sometimes in hind site. I may sound sick when I say this "but dang the torpedoes" I thank Jesus for this disease "in me",many will say he lost it , I don't like this disease at all and I pray it is wiped from the face of the planet and I pray for every one who suffers now and suffered in the past and those who will suffer when they find out "please do not take this the wrong way" But, for if I had not found it I would not have found Him. And in finding Him I have eternal life and true salvation. God works in many ways some we don't like, BUT I DO NOT HAVE TO APPROVE OF OR AGREE WITH GOD, FOR GOD TO BE GOD AND FOR GOD TO BE RIGHT. Those that know my history should know I did everything possable to get HIV and HCV, I thank God I don't have HIV, but I have HCV and some people didn't do anything to get this and a manicure could have done it, for these I am truely saddend, and those that played a dangerous game like me I also pray for. But I am living on borrowed time, for I should have died tenfold by now, but for some reason here I am. I am not on Tx and not to equate Tx with Methadone Withdrawl, but we all have our own personal hells, this is mine and when I am not on drugs that once were a reliefe and now a burden, I will start some form of Tx, but at the same time? not recommended.
As to the wonders of our Lord, I signed on and went to the posts and the first one I went to open I hit the wrong button and eventually opened a post about how you are supposed to get Hep A & B vacs when you are diagnosed with C. When I got the report from the gastro doc, I can't remember if he had mentioned it, I remember him telling me about Tx and my odds and the amount of time I would be on it and my mind was on the surgery he was supposed to clear me for, so I may have not heard him say it. He did say that I should make an appointment to start Tx as soon as I recover from surgery. I recieved no calls from any health unit or CDC or anybody, not even the gastro. guy. So here I am staring the truth in the face and started to freak, big time, I never made any appointments for follow up and was just trying to do the best I can by my liver (eating right, exercize, lots of filtered water, natural supplements and foods), to wait and see what my options are, and wanted to get another blood test to see what the numbers looked like, after a couple months, and never followed up with a phone call to a gastro. DUH. I so believe God can do anything, and He can undo anything, this I know in my heart and soul. I also believe Faith can move a mountain, BUT YOU'RE SUPPOSED TO BRING THE SHOVEL. : )
If you read my journal from yesterday the twentieth I think I covered where I was at that time, mentally and Spiritually. So any hoo I was freaking, heart racing, cold sweat running down my back, I started to type to Mckenzie because she had answered to the post and I was typing like a lunatic, rambling and scared out of my wits, when a calm came over me. I didn't ask the Lord for help and guidence, but he calmed me and then I remembered everything I have is at His feet, I prayed, then, continued writing with a new found joy that He not only led me to Important info, by hitting the "wrong" key, he also calmed me in a moment of panic (when my mind was racing back and forth between do I take a valium before I jump out the window (don't worry I live in the basement : )to why didn't I follow up with the gastro to I think I'll take my heart attack now please, to calm, sweet calm, it came as like a blanket, and I remembered He is with me here right now.
Every day a new beginning, not promised, but given by my Lord. Darn He's Good. Too good for the likes of me but still He brings me treasure. Peace and Prayers and hope to all, Pete
Well, it is Monday morning after a long boring weekend. Can't say I have been so homebound and resting as much as this past weekend. I am sure it is exactly what I needed. Just no extra energy to go anywhere, or be with other people other then close freinds and family. It takes energy to fake that you are feeling good LOL! When people ask how you are doing, other then my immediate family and DS friends, the other person really does not want to hear how you are REALLY doing! LOL Figured that one out long ago...Everyone wants to hear you are doing great on tx! So mostly that is what I tell people. Thank good for my DS friends!
Tomorrow is my shot night, and then I will be down to 6 weeks left! I have to keep focused on that....knowing it will be over sooner, rather then later.
Okay, wow I am totally blank today in my thoughts...and very boring.
Here is a joke to give anyone reading this boring post a laugh!
A supermarket had a sale on boneless chicken breasts, and a woman I know intended to stock up. At the store, however, she was disappointed to find only a few skimpy prepackaged portions of the poultry, so she complained to the butcher. "don't worry, ya ," he said. "I'll pack some more trays and have them ready for you by the time you finish shopping." Several aisles later, my friend heard the butcher's voice boom over the public-address system: "Will the lady who wanted bigger breasts please meet me at the back of the store." Okay, I hope everyone has a great week!UPDATED GOALS
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"B" loved that joke, it was my 1st laugh of the day. I think you and I had the same boring weekend sweetie, but that's what our poor bodies needed. I know what ya mean about "civilians" not wanting to hear your tx troubles and just want to hear your fine. When I talk with people on the phone, they all say well you sound so good, hey what am I suppose to sound like, Depressing Dora? I am trying to sound pleasant, that does not mean I feel pleasant. Hey you cannot tell if someone has "Fire in the Hole" just by the sound of her voice right lol. Thank God I can talk you you guys about everything from the "Heart Break of Psoriasis", to "Fire in the Hole" and Metamucil. I could not do this without you girls. Big ole hug for you today Gumby.
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You are not boring, just "excitment challenged" (:
You are one of my hero's, the other one you know. Prayers to you and the prayer warior untill I leave to meet our Father in Heaven (which hopefully is 30 or so years for me)unfortunately I think my life is in dog years I get 7 years older each year (: But you know as well as I, it's all in His time, not ours. Basically I am ready when ever Jesus calls me Home. When we've been There ten thousand years. Bright shining like the Sun. We've no less days, to sing Gods Praise. Then when we first begun. A m a z i n g G r a c e H o w S w e e t T h e S o u n d. Peace and Love to you and yours. Pete
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Amen to you Pete! Thanks!
Past Entries
Goal Updated
4 more weeks after tomorrow night...WOW!!!! I am jealous!!! (but in a good way)
Oh my...I'm laughing at your mother! You describe her in great detail to the point that I can just see her being the character on SNL! That annoying character...that you have to love in spite of it. And for goodness sakes, what's with the MIL telling you you look pale. Too bad you couldn't have had an urge to "spill" at that moment and direct it on her shoes.
I'll be watching for the pics. Glad you are feeling good today and back making and baking!
Glad to hear your opinion on the batman movie. I was thinking the previews were pretty dark/evil looking so I was going to pass on it. Maybe I'll go w/hubby now (he was going to go w/one of the boys). It's always nice to be pleasantly surprised by a movie.
Have a lovely night and I know you'll attack tomorrow night's shot with meaning!! :)
KaryMelly
wow 4 shots to go, good for you.
Funny how your mom is, mine is the same.
I love my mom, but she never thinks before saying something.
Like she is also 100lbs wet, and I am on all kinds of bloody medications, steroids for life, and she keeps talking to me about dieting.
Jezzz mom, no matter how much I would starve myself I won't loose weight, can't you get that.
Make me sad every friggen time she mentions my bloody weight.
You see I gained during tx, for some reason I gain, and continued to gain.
I used to be skinny, and now I'm more on the heavy side, and it drives her crazy, if only she knew how it drives ME crazy, maybe she would think twice before throwing it in my face.
Anyways, I'm glad you recommend Batman's new movie with Heath Ledger, I know he was really into his caractor before he pass.
I am definately going to see it now.
I too am not a big fan of BAtman, but if it made this actor get so involved into his caractor, it has to be a good movie.
Anyways, congrats on getting at the end of your treatment, you truly are strong my dear Warrior Women.
Now you take care and continue the good work.
Mckenzie
One day at the time.
Mckenzie
Bod bless you Barbara, I'm so happy that you are down to 4 more to go. Let pray that they fly by and don't cause to much discomfort. My daughter in law and I were just talking about going to see Batman. Taking all the grandkids, I wasn't sure if I'd really want to go see another Batman movie but after reading what you said about it I guess my mind is made up. Maybe we'll take them this weekend. I think I'm running out of fuel, this morning I can't hardly get started and Tiffany wants me to come over. I'm going to give her a little time to get up and moving before I go over. She needs to see a doctor today so I guess I'll be taking her to that. As far as the weight thing, like Mckenzie I gained weight during treatment, 30 lbs to be exact. I was at my all time high. I've lost 25 of it this year and going to start working on losing 25 more to get at a healthy weight. Not that it matter to my family they love me at any weight, hubby says he loves me just the way I am. So it really isn't something that I'm too worried about right now. When Tiffany is healthy enough to get back to the gym I'll start back up and we'll lose some weight together...Keep up the good work with TX Barbara you've done a wonderful job while on it...Joni..xoxo
nonilv
OMG 4 more shots after tonight...the end is in sight, very envious but happy for you. I bet you can almost taste it. Hey love my Mumsie, but she does not listen either. I notice when I talk with her, I talk faster than I do with other people. Then it dawned on me the reason I do this, is my Mom always interrupts and changes the subject, so I think I have always talked fast to her, in an effort to try and get in what I want to say before she cuts me off.
Your daughters mother in law sounds like a dosey, Mary is right you should of spilled on her shoes, and then dropped some hair on top of that lol. Glad you managed to have a good time though in spite of old crazy MIL. Guess I'll have to go see Batman now myself, though I'll wait until the theaters are less crowded, maybe go during the week. Thanks for the recommend. About 80 % there on getting my pharmacy ins woes straighted out, hopefully all will be resolved today. They finally sent we to #4 pharmacy now, but that pharmacy said they did not supply pegasys or ribasphere, so then my ins co had to send them a memo saying yes you do, so now I am trying to get it worked out with #4 pharmacy...what a pain in the !@#$%...but I know God is working on this and my pink hat is giving me strength to indure too lol. Have a great shot day...gosh your gonna be done next month. Whoohoo!!!!!!! Love ya
CSick
I am so so happy for you. Only four more!! You are a real warrior and have helped all of us too. You should be very proud. Marilyn
Lacudia
Way to go Barbara; glad to hear you only have four more! I just finished my 4th shot; you give me hope and courage. I sure hope my future MIL will always be nice to me; so far she adores me. The 1st day I met her, she told her to son I was a keeper! Hmm, I wonder when my sweetie plans on proposing??? We bought our rings on our cruise - what's he waiting for? For it to rain in Vegas; it suppose to rain this weekend? LOL I know that special day so he can remember the anniversary date, hee-hee. =) I am happy you are coming to the end of your tx; what excitement. Love, Nina =)
VegasNina