Progress
0 %
Current Weight (Lbs)
153
reuben’s Profile
-
reuben
is feeling OK
About Me
I'm 33, single, 3 kids(son15, daughters12.5&14), I was diagnosed with epilepsy at 10, but with in the past year my Dr. rediagnosed it as narcolepsy.I'm looking for some support and to find others like me.So I don't feel so alone, like I'm a total odd ball.I have VERY few friends.My daily life is me, T.V., computer and word puzzle books.OH, I almost forgot... MY KIDS! DUHHH! Only my girls live with me, my son is in a treatment center for anger management.
Interests
I have many interests but only get to follow through with a few. 1.Drawing 2.Music 3.Word puzzles(cryptograms & most brain teasers) My other intrests are 1.Astronomy 2.Nature 3.Developing my natural artistic & musical ability 4.meeting new people & learning about the world.
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
reuben hasn’t written any journal entries yet. -
Photos
reuben hasn’t uploaded any photos yet
-
-
Support Groups
Close Epilepsy & Seizures
I've been diagnosed with Eplsy since 10yrs. old.It started as partl/comp seizures as I got older they got worse & into grndml.I got vegus nerve stimulator (VNS)implant & seizure activity went down.Now only when I sleep. So rediagnosed as narcolepsy.
Treatments
- Depakote Somewhat Helpful
- Changed
- Dilantin Somewhat Helpful
- Changed.
- Felbatol Working / Worked
- Good. After VNS med. not needed
- Keppra Working / Worked
- Still on it& doing good.
- Lamictal Somewhat Helpful
- Changed
- Phenobarbital Somewhat Helpful
- Changed long ago.
- Tegretol Somewhat Helpful
- Changed long time ago.
- Topamax Somewhat Helpful
- Changed.
- Tranxene Somewhat Helpful
- Changed.
- Trileptal Somewhat Helpful
- Changed.
- Vagus nerve stimulation Working / Worked
- So far it has been the best help!!! No more seizures while awake!Night time spells reduced tremendosly!
- Zonegran Somewhat Helpful
- Changed.
Close Narcolepsy
reuben hasn’t entered any details for this support group.
-
Friends
-
Snapshot
reuben hasn’t been active on the site in a while. Why not give reuben a hug?
