beanie76’s Profile
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beanie76
is feeling OK
About Me
full time divorced mum my son is in the process of getting a proper diagnosis for his epilpsey.
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Support Groups
Close Epilepsy & Seizures
I have had epilpsey since the age of 4 it started with bad migaranes and then got misdiagnosed at age 11 as petie mal with myoclonic jerks, they where not too far of the mark and apparently ny type is rare so not surprising, I have now a correct diagnosis of EMA Eyelid Mycolina with atypical Abscences am now 31 and really do not expect to get any better than this but would love to just not be so tired all the time! Would love to hear from any others with EMA.
Treatments
- Clobazam Working / Worked
- side effects stop taking
- Depakote Somewhat Helpful
- Dilantin Working / Worked
- side effects
- Keppra Somewhat Helpful
- Lamictal Working / Worked
- rash on this one
- Mysoline Working / Worked
- side effects
- Phenobarbital Working / Worked
- side effects
- Tegretol Working / Worked
- side effects
- Topamax Working / Worked
- side effects
- Zonegran Working / Worked
- been on for nearly two months,just started
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