The buggy arrives
March 7, 2008 12:10pm
This is not really a milestone for many people in other countries. But Giorgia's buggy arrived this week and it is so fantastic. It …
MysteryGirl’s Profile
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MysteryGirl
is feeling Good
About Me
I am a professional. I have two children, my 4 year old daughter who has a medical condition which includes severe autism traits. I also have a beautiful patient 7 year old son. I try to live a normal life with my family, but it's not easy.
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Journal
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Journal Entry for February 7, 2008
February 7, 2008 1:26am
Hi everyone. Today I'm feeling more positive. I have found some great things for my daughter today. I found an amazing stroller/buggy that will …
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Journal Entry for February 3, 2008
February 3, 2008 2:12pm
Today I joined your support forum. I've been looking for a long time for a forum ofparents with children like ours. Some days I …
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Hugbook
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I read today in the 'Tribune' paper. (Palmerston North), that there is a nationwide campaign to better educate teachers, doctors and the general public etc about Autism and all the Spectrum's of Autism. They are asking for a questionnaire to be filled out online by 31st May, So I thought I would bring it to your attention. If you are interested and can help, then please go to this website to help this very needed cause. .It is completely anonymous. And only a short questionaire. www.inmyshoes.co.nz Being a parent of a 14 year old daughter with Aspergers Syndrome, I feel the need to help educate people about the difficulties we parents and indeed our children face daily. I appreciate your time and help. HUGS Jo.
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HUGS from Jo...you are not alone my Kiwi friend..If you would like to find more Kiwi friends and get support then come take a look at our group...KIWIS FROM AOTEAROA. Hope you are feeling good..Jo
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Sending you some kiwi love.....I have a 14 year old daughter with Aspergers Syndrome...totally know where you are comming from.
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How are you? Hope your having a good weekend
High Five
So glad she is doing better. Would love to see this buggy sounds really good.
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Support Groups
Close Autism / Autism Spectrum
My four and a half year old daughter was normal up until age 1, when she developed a severe epilepsy condition called SMEI. She is lucky in that she doesn't seem to have seizures anymore - she hasn't had any for nearly two years. Her condition has evolved however, and she has features of moderate to severe autism which make caring for her very challenging. Sometimes it feels too much for all of us! :(
Treatments
- Early Intervention Somewhat Helpful
- Pets Somewhat Helpful
- I got a puppy two months ago - a spoodle. I didn't expect G to really notice him, but she does. She loves him, laughs at his antics, enjoys his soft fur, and 'woofs' at him. He really helps her social skills. She also has to look down more and be more careful in how she's walking, becuase he's there and reminds her. It's been kind of heart warming to see it make a difference.
- Play Therapy Somewhat Helpful
Close Epilepsy & Seizures
My four and a half year old daughter was normal up until age 1, when she developed a severe epilepsy condition called SMEI. She is lucky in that she doesn't seem to have seizures anymore - she hasn't had any for nearly two years. Her condition has evolved however, and she has features of moderate to severe autism which make caring for her very challenging, although she is still Miss Gorgeous to us. Sometimes it feels too much for all of us! :(
Treatments
- Clobazam Not Working
- Only used this rarely. Hated side effects. Haven't used in two years.
- Depakote Working / Worked
- AFter approx. 1 year, this brought my daughter's agressive, uncontrollable epilepsy condition under control. She has still only had 2 seizures in 2 yeaers. We persevered with this drug through many seizures, but it turned out to be worth it.
- Lamictal Not Working
- TERRIBLEW for my duagher.
- Tegretol Not Working
- THE WOSRT drug of all for my daughter. Caused more seizures, she lost her mobility and her ability to be part of normal daily living.
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