nevaeh3's Journal

Of course We waited all day for a call from Doctor.  I finally had to leave for work.  I called husband around 6:30 and he said he had just hung up from his call.  He said the Dr. he saw called instead of Fellow Doctor.  He said that he still supects Pompe Disease but since his lab messed up that we will have to wait  a couple of weeks for the blood test that we have to go  out of town to get takenl  This is the one that has to go to Duke University.  Husband says teh Dr. was very nice and talked to him as if he was interested in his case. I guess because it is so rare.  He did mention that there is enzyme treatment abailable, but we will see.

I am tired, I had to chase shoplifters tonight. I got called a b__ch more than once.  Oh well at least they didn't get anything. Tomorrow is the 9-9.  Ugh!!!

Post more tomorrow.Thank you for listening to me. Have a great night. 

Nev