Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
Journal Entry for April 1, 2008 Mood
Tuesday, April 1, 2008

We were up all night last night and boy do I have a whopper of a migrane today.  I had to take Hayden for his 15 month check up today and shots...... man I hate putting him through that.  He starts freaking out the minute they touch him so he screamed and screamed until he puked, then screamed some more.  He is taking a much needed nap right now so I am trying to do some research.

 

I got a copy of the Neurologist report from his visit in February and I am heart-sick.  Sometimes not knowing is better........ isn't it?......... The neurologist had told us about the autism, microcelphaly, hypotonia and clonus but never once mentioned that he has Static Encephalopathy.... and it is his primary diagnosis.  Why didn't he discuss this with me instead of me having to  read it from a peice of paper?

 

RATE THIS ENTRY:
Inspirational
Moving
Helpful
Creative

Comments

  1. CJshootnbbq

    (((Bear Hugs))) to you MawBear...
    I don't have any words of wisdom, only a hug & for that, I'm sorry...
    If you need to talk, just holler...
    CJ


    CJshootnbbq

  2. Jackie19467

    oh hon I am sooo sorry,, I wish I were there to help you through this,,, I am here if you need to talk,, love you my friend,,God Bless you


    Jackie19467

  3. ckissner

    Knowing IS better. It gives you a direction. From what I've read, static encephalopathy is just the over all name ("reason") for the individual diagnosis he's already received. (but remember, I'm just an accountant. It's all the rest of my family that's in medicine!)
    Check out
    http://www.come-over.to/fasstar/st...
    Remember, it's just a word on a page. It doesn't change who he is or what he has been or what he will be. He's still your boy! Give him a hug for me!


    ckissner

  4. barbra2

    my heart goes out to you...big hugs
    seems like kids today are really getting some bad things and that is not fair to happen to someone so young and precious..


    barbra2

You might also like ...

A Town

Mood By jadedjanel 1 Comment

Today, i am in Albany, and im at Staysha's house, weve been watching crazy videos, ive laughed nearly puked, and …

Last night bad... really bad.... …

Mood By Herding123 3 Comments

 Last night bad... really bad.... Having severe back pain flair up... Started to stim and parents got angry that I …

He has already screamed at his …

Mood By SomeMore No comments

He has already screamed at his brother a bunch of times.

Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse