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  • Image of 1concernedparent

    About Me

    I am a wife and mother of two. I have a 6 year old daughter and a 3 year old son who are everything to me!

    Interests

    My biggest interests I have are music and writing. I am a four time published poet. I am musically multi-diversified and play about 7 instruments!

  • Recent Activity

    Yesterday

  • Journal

    • It's getting closer!

      Mood July 23, 2008 2:59am

      It's about time I update this thing lol.  Still hanging in, having low red and white blood counts and feel about 90 years old.  Felt …
    • Been Away Awhile

      Mood June 16, 2008 1:07pm

      I haven't been on here much the past two weeks, but still pray everyone is doing fine and great!  Was busy last week with my daughter …

    • Feeling yucky

      Mood June 2, 2008 11:03am

      I haven't been on much over the last week.  The last couple of shots for my treatment has been more "icky" than normal due to my …
    • For Hope

      Mood May 18, 2008 2:29am

      This is something I wrote tonight trying to work through my feelings of being scared, hopeless, and devastated.  Perhaps by sharing …

    • Shot 25 tonight!

      Mood April 25, 2008 7:31pm

      Well tonight is shot 25, so I'm officially OVER half way done   It's going by much more quickly than I expected!

    Read Journal

  • Hugbook

    Give 1concernedparent a hug

    • Hug

      From FlyingMonkey Today

      Glad you got some rest hun...i understand the downs/up as you know (I'm ok now too just tired). How strange we are I just now was getting up to make me some oatmeal. Did yesterday and it was great After our last chat I remembered that instant oatmeal w/toast has always helped me when I loose appetitie. So here's lifting a spoon of oatmeal to ya my twin! Let's try to have a good weekend ok - is that a deal? xoxo

    • I’m With You

      From abuff2 Yesterday

      thanks for all your good thoughts

    • Flower

      From FlyingMonkey Yesterday

      Morning sunshine - hope this is a good day for you! xoxo

    • Hug

      From California6 Wednesday

      Hi precious , I'm glad they cut back on the rib , it does make you enemic , that's the job . Like cutting down on the food source for the hep , but drainning you too. Glad you're feeling better . I've been going much to fast and hard lately , but this is the season for repairs , so we do what's needed . Are you thinking any clearer , or do others notice the change also ? Stick to it hon , I think you're going to be fine .

    • I’m With You

      From abuff2 Wednesday

    Read Hugbook

  • Goals

    Progress

    83 %

    Goal End Date is Sep 26, 08 63 more days.
    HCV RNA (Hepatitis C)
    0
  • Support Groups

    • Close Hepatitis C

      Was diagnosed with HCV in February of 2007 with unknown an cause of the disease since I have no real risks factors for contracting the disease and all those close to me tested negative. I also have fibromyalgia from HCV, am in stage 0 liver disease, currently my viral load is undetectable but was 250,000 before starting treatment. I am in week 27 of treatment for genotype 1b as of the May 9, 2008.

      Treatments

      Cymbalta Somewhat Helpful
      This helped me alot, but not as much as lowering my viral load to undectable did. I think my depression was worsened by the virus itself because of that fact. Over the course of 5 years being infected with HCV and undiagnosed my depression kept getting worse and worse.
      Lyrica Not Working
      I took this medication because of the fibromyalgia I had gotten from HCV. I didn't feel much different on the medication, however I started my HCV treatment right after this and as my viral load dropped so did my symptoms for fibromyalgia and no longer need medications like this.
      Pegylated Interferon Working / Worked
      I am extremly fatigued and struggeling very hard raising my 2 and 6 year old children while on treatment. Experiencing weight loss, some hair loss, some nausia.
      Psychotherapy Working / Worked
      I was already in therapy due to depression, but this has also helped me when I was first diagnosed and now that I'm on treatment.
      Ribavarin Working / Worked
      Same as for the Pegasys, but I'm also having trouble fighting off infections. I am having low red blood cell counts with this, but not enough to need medical intervention.
      Topamax Working / Worked
      I take 100 mg a day of this to stop the chronic migraines I get from treatment. I am already migraine sensitive prior to HCV treatment, so HCV treatment really starting bringing out my migraines. However, I've been on topamax treatment for 4 months and no migraines I have lost 20 more pounds from when I started this medicine in addition to the little over 10 pounds I lost before I started topamax and started HCV treatment.
    • Close Asthma
      Type: Other

      I have asthma from the lung injury I received from GERD while pregnant with my first child. After delivery I was on life support for my lungs and was having tons of stomach acid pumped from my lungs and stomach, now I'm left dealing with asthma.

      Treatments

      Advair Working / Worked
      I used it, it worked but I preferred a non-sterroid approach and switched to Singulair.
      Albuterol Working / Worked
      Worked but switched to Xopenex to lessen the feeling of light headedness and dizziness.
      Singulair Working / Worked
      Works the best for me, especially since I have resp. allergies that tend to aggravate my asthma.
      Xopenex Working / Worked
    • Open Fibromyalgia

      I have Fibromyalgia from HCV that the dr's don't know where I got infected from since I have no known risk factors.

      Treatments

      Lyrica Working / Worked
      I was given this mediation to cope with the fibromyalgia that I recieved from HCV. It never really helped, but when my viral load dropped to undetectable was when my pain got alot better!
    • Open Depression
      Type: Clinical (Major) Depression

      I have battled depression on and off my whole life, but the real battle with depression has come now that I am on HCV treatment since it is a huge side effect of treatment.

      Treatments

      Cymbalta Working / Worked
      I do feel alot better on this medication, but I still have quite a few lows, just not as often. I'm on a double dose of the maximum strength of this medication though due to my HCV treatment. I was able to drop down to 60 mg due to depression lifting as my hcv started to go away and now is undectable.
      Lexapro Not Working
      This medication worsened by depression and gave me thoughts of suicide.
      Psychotherapy Working / Worked
      My first therapist was horrible and made things worse, now I'm working with the right person it helps alot!
      Zoloft Not Working
      All this medication did was put me into an unfeeling zombie state.
    • Open Migraine Headaches

      I have battled migraines since I was 8 years of age. Sometimes they can be so bad I wind up in the hospital.

      Treatments

      Caffeine Working / Worked
      If I don't have a prescription or Excedrin I will take this with tylenol and benedril.
      Excedrin Working / Worked
      I use this one when I'm out of my prescription
      Imitrex Working / Worked
      This works great when I take it when I'm getting a migraine.
      Maxalt Not Working
      I don't use this one anymore
      Midrin Working / Worked
      I used this before I had Imitrex
      Topamax Working / Worked
      I only take this when I have to take a medication treatment that chronically triggers my migraines. Which currently I am on this and it makes me lose a ton of weight.
      Tylenol Working / Worked
      If I don't have a prescription or excedrin I will take this with benedril and caffiene
    • Open Sleep Apnea

      I was diagnosed with sleep apnea when I did a pulmonary stress test due to worsening asthma and it suggested I either had mitochondrial myopathy or sleep apnea. Was tested for both and only tested positive for the sleep apnea (which I was tested with 2 sleep studies) and negative for the myopathy.

      Treatments

      CPAP Working / Worked
      I use my cpap every night with a nasal mask set to pressure 10. I've been using it for almost a year, though I still find it annoying sometimes, I do feel alot better with it.
    • Open GERD & Heartburn

      I had problems with my stomach my whole life and never knew why until my first pregnancy I kept having severe problems and my ob kept doing nothing about it. I had severe complications at the end of my pregnancy including lung failure with my lungs filled with stomach acid and I was on life support and had stomach acid pumped out of both of my lungs and my stomach. It wasn't until then I was diagnosed with GERD. Now thanks to that incident, I suffer from asthma for the rest of my life.

      Treatments

      Antacids Working / Worked
      I only use when I have a break through attack
      Avoid Certain Foods / Chemicals Working / Worked
      Baking Soda Not Working
      I tried this once when I was desperate and I will never do it again!
      Nexium Working / Worked
      This one was my favortie but due to having to get a different insurance company and this one not being covered I had to switch.
      Pepcid Not Working
      I've tried this in the past and it does not work.
      Prevacid Somewhat Helpful
      I have used this one before during one of my husband's work's many insurance company changes but it is not my current medication.
      Prilosec Working / Worked
      My current treatment but it's starting not to work as well as it use to.
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