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dixivic's Journal

Journal Entry for June 6, 2008 Mood

Friday, June 6, 2008 | A General Update story

I think I'm back. I know I kinda disappeared there for a while, but it was necessary. I was going thru a period of hallucinations, weird paranoia, losing my balance and falling down alot, even a week-long migraine that just ended. I had to withdraw and be alone for a while. Frankly, I didn't like it. I like the company of my friends much better. I just felt like I had nothing good to offer anyone right then, and that I needed to work my problems out alone.

I went to my pdoc today. This was the visit that my neurosurgeon said we needed to go off the meds that could be making me fall down all the time. I am half off the Lamicatal, will finish that this month. We dumped Abilify and Trazodone. That left me on a low dose of Paxil and Topamax. She added 6 mgs of Invega for the psychotic symptoms I've been having. She consulted w/ a psychiatrist that is also a neurologist and they've concluded that I need to get a second oppinion. They don't believe the problem is my meds, they think it is more than likely the tumor. (God, I wish someone would make up their minds!) They think I need at least need a MRI done, possibly a biopsy. So far all I've had was a CT scan. Lord, I'm so tired of all this. I'm a good girl...I go to all my dr appts, I take all my meds like I'm supposed to...still I'm in one meck of a hess. Even the drs can't agree. All I want is to feel ok. Aw, man, I"m whining again. But, dadgum it, I FEEL like whining...

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Comments

Dix,my God you have beeen handed a truck load of trouble. I am so sorry to hear you have to suffer like this. I can not say I know what you are going through, because this experience I personally I have not had. But I will pray for your healing and relief from this suffering. You go slow and take care of yourself. I am here if you need to scream a bit. Annie ((((HUGS))))

Moonshowers
Sorry you've been feeling so crappy.Im no Doc but I think the second opinion is a good idea.Are you going to have difficuty again finding a neurologist?
Don't feel like you're whining....I believe a persons journal is for the good and the bad.....we all get the bad sometimes.
Well, you are doing all you can and hopefully you can get your second opinion soon.Take it easy.Jo

1whoruns
Whine away! We all need to do that sometimes and you certainly deserve to. I hope they get you straightened out soon. Here for you kiddo. Huge Hugs~Rita

rs6363