still in the hospital
March 10, 2008 2:45pm
Daughter is still in the hospital. Her mestinon is now up to 90mg. It has helped her double vision alot and she seems to …
Gobsmacked’s Profile
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Gobsmacked
is feeling Bad
Interests
Painting, drawing, sewing, decorating! Love to read too :)
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Journal
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another great week
March 8, 2008 2:13am
My daughter is back in the hospital. Her dr. is looking at different options to help with the MG: plasma., ivig, steroids. He …
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Sunday Evening
March 2, 2008 7:48pm
Things haven't been too bad the past couple of days. Ms15's MG has been mild-mod. she's been able to come downstairs …
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Journal Entry for February 23, 2008
February 23, 2008 12:49pm
Doing ok today. Happy to know my brother is safe. ms15's MG is not as bad today which automatically helps her …
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Hugbook
Hug
Hug
Just wanted to send a big hug to all my friends, and Hope that you are fighting the fight that is in our daily lives, and looking forward to victory. xoxoxoxox Rachel
I’m With You
We're praying for your family! We will definitely be praying for yours, and your daughters strength and health! Ohh, and don't forget your sanity! LOL
Hug
thanks for the welcome!!!...how is your daughter feeling??
Flower
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Support Groups
Close Myasthenia Gravis
My daughter is 15 and was diagnosed with MG in Oct. It took 3mths to get the diagnosis(which i found on the internet!). Dr.s were wanting her to go to a shrink, said it was all in her head! By then she was 89lbs. She spent a month in the hospital on a feeding tube and vintilator and had a thymectomy. Things have improved some, she can at least eat and talk now. She can walk some but is unable to attend school and has horrible double vision. The dr. seems to think she is doing well:(
Treatments
- IVIG Working / Worked
- Hard to say how this helped it was right before the surgery. Can't really say if it was this or the surgery.
- Mestinon Working / Worked
- Better than in the beginning.
- Thymectomy Too Soon to Tell
Close Eczema
My 11yr old has eczema and asthma. She was tested for allergies a couple of years ago. After taking shots for almost a year her eczema is worse than ever. We have moved to another state so she hasn't had any for a while. She is a very bright wonderful 5th grader. We are now homeschooling due to other family medical issues.
Treatments
- Elidel Working / Worked
- worked wonderful for her face. need to get more!
- Eucerin Working / Worked
- works somewhat.
- Hydrocortisone Somewhat Helpful
- sometimes works!
- Triamcinolone Topical Not Working
- she has that now and it doesn't help anymore. she is itches even more after she uses it.
Open Family & Friends of Bipolar
I am a SAHM with three wonderful children. My son was diagnosed bipolar at age9 and is now 13, also has severe anxiety. My daughter is 15, also with BP and Myasthenia Gravis. The youngest is 11. We are in the process of finding a new psychiatrist in a new state.
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Snapshot
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