I am 35.Jesus Christ my Heavenly Father comes frist in my life. I have NF2.I am in pain 24/7.I was married for four months i had to leave because of abuse towards me. I've not worked since 97 becaise of the NF. I love Oregon, fishing , hunting, (when i can).But if i could i would buy a nice piece of land way out in the country. Dignosed at the age of 3 with NF. I've had to use a motoerized wheelchair for the last five or six yrs. I can walk but not far. But i love going on walks.They may be short walks, but in time they well be long walks again. If any of you have any questions ask away. NF2 has really changed my life.I never thought it would be like this. The one thing i really want is to meet somebody from my area who understands what im going through and we can talk .The pain i really try not to let it controll my life.And the Lord helps me with that one alot.
The things i most enjoy are reading.I love fast cars, Grand Prix Races. Listening to Christain Rock music.When im not hurting i like to go for long wheelchair rides, (since i cant drive), I went 20 miles the other day. Just started worken with wood.So im learning as i go. And if i get a chance to go sailing.I love the water and boats.
CrawlnRocks91 wrote a journal entry: Journal Entry for August 14, 2008 4:32pm
wELL ITS BEEN AWHILE. I WENT TO THE NEUROSURGON IN SEATTLE. I WAS VERY DISSAPOINTED. HIS FRIST QUESTION…
CrawlnRocks91 changed their mood to Good 4:21pm
CrawlnRocks91 turned 35 12:00am
August 14, 2008 4:32pm
wELL ITS BEEN AWHILE. I WENT TO THE NEUROSURGON IN SEATTLE. I WAS VERY DISSAPOINTED. HIS FRIST QUESTION WAS "WHY?" . I WAS LIKE …
July 4, 2008 12:31pm
Well I had surgery a week ago now. It's not been very fun. I still have threee more weeks of doing nothen.
I didn't relize how messy i was, …
A birthday present of happiness to a good guy
A I'm with you for my friend
??? Where are you
I hope things get better for you very soon.
I have NF2. I am 34. I was dignosed at the age of 3.But it was NF1. I have tumors all over 100s of them and they just keep popping up everywhere. Its seems as i get older the worse it gets. At 25 the docter said i have NF2.I have a scoleosis which is getting worse and worse. I havent been able to work since 97.
