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The first time MeL went through this process it wasn’t this hard on her. She was given three doses of anti rejection drugs through the catheter in her chest an hour apart. Anti rejection drugs make her sick it wasn’t as bad when they did it in small doses.
Yesterday we knew that MeL might be rejecting the bone marrow. She had all her test in the morning at 4:00 we were still waiting for the results. MeL forced me to go to our sons play when I returned back to the hospital she was already in I.C.U. The transplant was done. I had my cell phone on the whole night no one even called me.
I am still not sure what happened what I under stand she was given not only the bone marrow but twice as much of the anti rejection drugs all at once. The dr. only left her an order for vicoden pills witch she could not swallow.
Finally after a very rough night the Doctor came in at 8:00 am and gave her something to help her sleep. She would not answer any of my questions about why things were done the way they were. She would not even look at me. She told me as long as her blood pressure looked good she could go back to her room at noon.
She kicked me out of the room and told me that MeL needed her rest. MeLs normal doctor is out of town and this woman is a quack. I am trying to get to the bottom of this I am not sure when MeL will feel like getting back on line.
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I MeLinda swear to the fowling :
1. Drink 4 ensures a day
2. Eat lunch every day
3. Allow hubby and others take(not MIL) care of kids. Believe that just because they aren't doing it my way doesn't mean it is wrong.
4. Take pain meds without complaint
5. Allow other to decide what is best for me as I am not capable of doing this
6. Take a nap a noon (2:00 D.S. time) every day
7. Be a grateful recipient of others help
8. Go to sleep at 8:00 (10:00) D.S. time
9. Practice patients because that what Jesus would want me to learn right now
10. not ask anyone if they have ideas to change court order
11. not complaint about about being in hospital
12. be kind to hospital staff Jesus would want me to.
Please friends help MeL do this for her own sake. I am going to set up a profile so that you can all use it to tell on her if you need to.
Comments
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mel i am with you all the way. right now whether you like it or not you have got to do these things in order to get better.please hang on and know that i love you and i am here for you and there are lots of people who love you here and are willing to stand by you.
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Nobody said anything about not saying hubby is a huge butt head with his own control issues. If you didn't get it he made me do this.
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For now...hubby is right. This is a great list and I think maybe these are some personal attributes you may need to learn. We will get you perfect yet : ) Honestly Hun, this is a good list and if this is all you have to do to get your health back,,,is it really so much? The hardest parts are behind you, now it is just a matter of follow through. Don't allow your fight for independence damage your health in any way. When the time is right to hand you back the reins, I have no doubt Dr. and hubby will be more than happy to give you your freedom. Patience and healing energy...nothing more, nothing less. HUGS and love for you sent in truckloads.
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I agree with Nanoe and Carolina.. We kinda would like to see you happy and healthy here real soon. You need that for you and the children and yes.... the butthole hubby.. lmao.. Im here if you need me..
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I agree with you Mel hun. Your hubby like mine is a complete Butt head. A butt head that loves his wife so much, that,ll he will go to the ends of the earth to get you well again as i know would mine.
Please do this for you most of all Mel, but do it for your friends here as well, and not forgetting your lovely endearing Butt head.
We are so with you every step of the way here Mel. The day you come home from hospital well again will be theday i smile for once in my life. Sooooo how about putting a smile on this ole gals face. i,ll be waiting for that day to come. love & hugs Ceri & Jade.xxxxx
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lol. :) He could have control issues but do you really think he's all that bad?
Just as soon as you get feeling well, I'm betting he'll let you kick him around the house.
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still praying for you.please try really hard to follow the list.Barb
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this looks like a tall order... sorry to say, but if that is what you have to do in order to get the hell out of there... do it, don't have to like it.. your not going to be able to control whats going on if you get sicker hunny... get better okay?
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this is a really good to do list here darlin. It will take patience but I know you can do this. It may have been his idea but is with your best interest at heart darlin. Try it for a few see how it goes, never no it may just help! Love you darlin
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will be praying for you guys... please continue to fight hunny.
walkinfaith
Thank you so much for keeping me updated. I sure hope she is going to feel better soon. I hate hearing all this about such a wonderful friend. If there is anyway I could send her flowers or something when she gets back to her room or home, please let me know.. I am praying for you and her and your family.. hope she gets some much needed rest.. Y'Vonne
meandthebeast
I am sure it has to be beyond hard when you have no trust in the Dr. I hope her Dr. is back soon. In the meantime I think I would raise some hell and DEMAND to have ALL your questions answered. You have that right and these Dr.s with their God complex should not be allowed to get away with treating people the way they do. Call in someone for a second opinion to review all the chart and answer questions if this demi-god refuses to be human for a few minutes. I am so sorry you are being put through this crap. My prayers continue and I know Mel will do her part. As for you, you need answers...go get 'em tiger!
Nanoe
She,ll come back on line in her own good tie, when she feels a little better.
We all understand on here that what Mel is going through right now, you are going through it with her. the pain of seeing your life partner suffering and in pain is just as painful for you as well as Mel.
When you get frustrated and want a shoting box, use here to do it hun. we all understand.
Pleae believe us when we say we are with you & Mel every step of the way. we may be just words on a screen, but there is a person sat behind each computer screen sending all our love out to you & Mel right now. Keeping you both in my prayers.
Love & hugs. Ceri.xxxxxxxxxx
ceri12
You are a dear to come here and update us. She and you and your family are in my thoughts. Sending peace and get well wishes. xx -Daisy
Daisylou
thank you for letting us know what is going on with mel. you all are in my thoughts and prayers.i am so sorry that you has had to have another thransplant but i am praying that this one will work.i would also be raising hell and find out why you were not advised of what is going on. if you are in charge of her medical rights they should have never done anything without your consent!love and prayers to you
carolina320
keeping her in my prayers.Barb
bcm101
Unknown Drs are always woresome since they don't seem to know all the history. I'd follow up and figure out what all is going on.
Stay strong and I will pray for you tonight, pray for the health of your family.
pixie0413