Playing Catch up as usual!
July 8, 2008 7:35am
I am playing catch up, again. Im getting bad about not checking in when Im not feeling well, especially when Im going thru a flare, …
Progress
20 %
ladycarter’s Profile
-
About Me
My name is Tish, I'm 45yrs old, I now live in Louisiana with my husband of almost 2 yrs, and my just turned 18yr old son, I'm orig from Alabama. I was in the US Navy during the Reagan era, my training was in telecommunications, computers, and Satellite communications, I attended 2yrs electronics, and 1yr of network engineering courses a and have built over 400 computers. I have 1 son, with whom, I Love with all my heart, and wish I could have given him, so much more!
Interests
I use to be on a swim team, a racer, I love sitting outdoors watching the sunrise, and all Gods creatures, it calms me, for the day and I hate when it's to cold to go out, my husband eve bought me a gazebo, to avoid the sun for my prayer and meditation time.I love animals, and I like to decorate when I have the energy, kind of a perfectionist, you know every thing has it's place, it also helps me remember where everything is. I love the beach and ocean too but not good for me anymore, and I hate that! and most of all I love being with true friends.
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
My Mom,
May 30, 2008 12:16pm
I also, have had to drive to B'ham, to see my Mom, who had a 2nd knee replacement about a year ago, she, was not able to walk on …
-
just been very tired and discouraged,
May 30, 2008 9:35am
I have not been on here in quite sometime,I have missed sharing with the friends I've made here, and hope I will be more consistant in …
-
Journal Entry for April 5, 2008
April 5, 2008 9:58am
I have gotten so far behind on here, and on many other things in my life right now, Im struggling with acceptance of the situation my son has gotten …
-
Friday, February 29, 2008
February 29, 2008 8:58am
Well, as I reread my last journal entry I'm kinda dissappointed in myself, I knew better than to order those stupid muscle relaxers, I know I was …
-
-
Photos
-
-
Goals
-
Support Groups
Close Lupus
I was diagnosed with severe discoid Lupus in 1997, after a year of unknown rashes, and hair loss, which became permanant, lost my job, had no healthcare, so the damage was bad, I learned to glue hair on to look normal, when I wasn't in a flare, wore wigs, hats, scarves, most of te time, then I was diagnosed with raynauds,and fibromayalgia,and got my 1st positive ANA test last year. I have been on disability for 3yrs now, so I get much better care. I am Grateful To God, for everyday!!
Treatments
- Cellcept Working / Worked
- Seems the best Medication I've had,It definately keeps flares at bay!
- Laughter Working / Worked
- Sometimes, we just get bogged down, with all the seriousness in life, it is good the laugh at myself, and my life experiances, to be able to take something once painful, and see the insanity, and humor in it!
- Methotrexate Not Working
- did not work well for me, cellcept much better
- Plaquenil Not Working
- didn't work for me.
- Prednisone Working / Worked
- It does keep my flares down, and skin clear, or lesions
Close Fibromyalgia
My nickname is Tish, I grew up in B'Ham, Al. now live in Louisiana, (Strange but beautiful) Im 45, I was diagnosed with Lupus, Raynauds, and Fibromaylgia, Im married, and I have an 18 yr old son. I left my freinds, in B'ham, and am lonely here, so have been seeking support online,
Treatments
- Duragesic Patch Working / Worked
- was taking, but pain doc switched to Kadian.
- Lyrica Somewhat Helpful
- I believe it is working, I think I may have to get dose raised.
- Morphine Somewhat Helpful
- This is prescibed for Lupus, it takes the edge off, so I can funtion a little better in day to day life. Don't like being dependent, but hate being in pain, and feeling like a burden to everyone.Think I liked the Opana better than the Kadian.
Open High Blood Pressure
Well have had Discoid Lupus,10yrs,SLE almost 2yrs,Raynauds,CFS,and Fibromaylgia, the hypertension start with SLE.
Treatments
- Clonidine Working / Worked
- makes me tired, but keeps bp controled.
- Procardia XL Working / Worked
- was taking for Raunauds,until bp started to elevate.
- Diltiazem Working / Worked
- Taken only bedtime.
Open Raynaud's Disease
HaveLupus,Raynauds,CFS,and, Fibromyalgia. Was on procardia until bp started to elevate, now have hypertention. My hands, knees, fingers, and toes, are normally purple in color, with numbness, and extreme sensitivity, to cold.
Open Depression
I have Lupus and cannot tolerate the sun, which means I don't get enough of the seratonin production/release and just the fact that I'm dealing with a Chronic Illness. I am considered to have Situation Depression, that comes with different Traumas in my life, I am also dealing with extreme axienty levels at this time.
Treatments
- Lexapro Too Soon to Tell
- Positive Thinking Working / Worked
- Pray and Meditation, including Inspiration daily medation books, and 12 step living.
- Psychotherapy Working / Worked
- Have done, much therapy in the past,and have started again, truely believe you get out it what you put into it!
- Support from Friends & Family Working / Worked
- Done mostly online now, or on the phone with friends in my home state!
- Writing Working / Worked
- Trying to journal again this is hard for me, but I know necessary, got to get the negative out, to bring the positive in, this is also a way to recognise, my patterns.
-
Snapshot
Recently …
