RuthMH's Journal

   Today was a good day for me.  No seizures, no double vision, no uncontrolable balance problems.  Today was a good day.

   I did have a migraine today but it only lasted  about 6 or 7 hours. This is very good for me. I do feel a bit guilty that I had a good couple of days when others don't.

   I saw my Neuroligist on Friday.  I had prepared myself with a list, a very long list, of the side effects that my Lamotrigine has been causing with me.  And I was prepared for an argument from him about my wanting off this med totally.  I had told him 6 months ago that I was having problems with this but my memory failed me and I had forgotten my list at home.  Not so on Friday.

    When he saw my list he immediately said he agreed with me.  Boy was I shocked.  It appears I have 2 types of Epilepsy, that part I knew, and a few different types of seizures.  When I have something, I have it in a big way! 

   The Lamotrigine was given to me to control the complex partial seizures I have.  They have been virtually uncontrolled and didn't change much with the med.  After different meds for this I'm not trying any other meds for this.  So I'll put up with them.

   So the Doc gave me a schedule to decrease med slowly so I don't set off a series of seizures and so I don't go into shock or a coma.  I've already done the coma thing, didn't like it.

   After he agreed to this I told him I wanted to increase my Tegretol by 400mg a day for a total of 1200mg a day.  He also agreed with this.  I felt very good about my visit Friday.  I wish some of my DS friends were so fortunate with their appointments.

   So, fingers and toes crossed and prayers said, I pray for relief from pain that my DS friends have.  My Mom used to say that God works in mysterious ways, let's all hope that the mystery is lifted for my friends and the struggles get lessened, at least a bit on their days.