NylahNJ’s Profile
-
NylahNJ
is feeling OK
About Me
I am happily married to a wonderful man, who has Cystic Fibrosis. I'm a housewife, so besides cleaning, and balancing the checkbook, I'm busy doing research. I've been looking for people who know what my husband and I go through when dealing with his CF. My husband is my life, and God has truly Blessed us. At the moment we are currently praying - and trying - to have a baby.
Interests
My current interest is finding out as much as I can about CF and the latest medicines.
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
NylahNJ hasn’t written any journal entries yet. -
Hugbook
-
Photos
NylahNJ hasn’t uploaded any photos yet
-
-
Support Groups
Close Cystic Fibrosis
I'm married to a stubborn man, who has CF.
Treatments
- Pulmozyme Working / Worked
- Daniel does this once a day, when he does have the medication, it seems to help.
- ThAIRapy Vest Somewhat Helpful
- Daniel, is suppose to do it twice a day for 20 minutes. He doesn't really notice anything.
- Advair Working / Worked
- It helps when he has a coughing fit.
- Nexium Working / Worked
- Helps keep stomach acid low so that his liver can break it down. Hasnt had gallstones since he began using it.
- Zithromax Working / Worked
- uses it when he starts to feel some infection coming on. Doesnt want to become immuned to it.
-
Friends
-
Snapshot
NylahNJ hasn’t been active on the site in a while. Why not give NylahNJ a hug?




