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Lesa's Profile
| 5:39 pm | |
| 05/13/08 | |
| 05/09/08 | |
| 05/03/08 | |
| 04/29/08 |
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Hug
Anarkali (3:01 am)
Just wanted to say that I am thinking of you and sending you love and hugs.
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Hug
Hathani (2:42 am)
Just heaps mm
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Prayer
jannis (2:23 am)
Hello lesa...I am sorry I havent kept up with your recent journals.I am so sorry to hear of you and your familys loss.I will keep you in my thoughts and prayers.hope you are feeling good and that your weekend is a peaceful one.......(hugs)
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Goals
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| Guillain-Barre Syndrome (GBS) |
| Diagnosed with GBS in 2000,and CIDP in 2003,after relapse.I was paralyzed from the waist down,and after 6 months of rehab-went back to work.Now my CIDP is progressive and a lot of days are spent in my power chair.I get IVIG 3 days every other week.It slows the progression down.Neurontin for pain.Imuran added to further suppress my immune system. | |
| Treatments | |
| Ambien (Working / Worked) could not stay asleep because of breakthrough pain.Ambien CR helps | |
| Azathioprine (Too Soon To Tell) Imuran added to the IVIG infusions in hopes of slowing the CIDP progression | |
| IVIG (Working / Worked) IVIG very early after diagnosis,and since CIDP.Balance Master to help me regain balance after initial GBS. | |
| Keppra (Working / Worked) helps tremors in my hands | |
| Neurontin (Working / Worked) I've taken this since my first bout with GBS for pain.It's not addictive and works very well for nerve pain. | |
| Supportive Care (Working / Worked) I live alone and have an aide through Community Long Term Care.I have in-home Nursing care.I've had PT at home and at rehab centers. | |
| Zofran (Somewhat Helpful) Helps with the nausea from IVIG | |
| Promethazine (Somewhat Helpful) For nausea from IVIG | |
| Arteriosclerosis |
| I have an ABF graft and have had several occlusions in it.My IVIG is a blood product so they give me Lovenox each treatment day to try to prevent clots. | |
| Treatments | |
| Angioplasty (Not Working) | |
| Lovenox (Somewhat Helpful) Injections of Lovenox on treatment days and when INR is low | |
| Coumadin (Working / Worked) Will be on this for life | |
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