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I have been struggling over the last few weeks since my last post. I am still having spasms & pain in my back constantly. As well as that fatigue has gone through the roof. Both legs have been spasming bad & I dont just seem to be able to get on top of it.
This week I have got a rotten cold/chest infection etc & the dr gave me a week off work so I am home for a few days.
Today I wen to the oorthotics speciialist & got 2 new foot splints & new orthotic shoes. Hopefulty these will help me to walk better. I then went to the Dr & then home to rest.
Next week I have a appt with centrelink & also neurologist appt so should get some answers i hope.
On another note, I have found some of the main board discussions most frustrating & depressing. I will still occasionaly read the posts as I have made a lot of friends there. Just wanted you to know why I have disapeared.
God bless you all
Sue
Comments
I woke this morning very painful & thought I was not going to be able to get up at all. Both sides were numb & I couldnt move arms or legs & head felt like it had a washing machine in it. My back was also very painful which other than after lumbar puncture is unusual but it felt like it was spasming. I managed to get right leg & arm moving a bit so draggd myself to kitchen to have pain killer. Had endone (morphine) & went back to bed. Managed to get back to sleep & kept waking up with spasms both legs arms & back & neck was hurting i I moved. Not a great start. Slept till later morning & then got up & gradually managed to put track pants & jumper on, that was a challenge in itself for sure. Got some breakfast & forced myself to eat it. Have been living on pain killers today. right side is better than 1sst thing this morning though left leg is dragging, arm has ltd movement & head still hurts. Thought was going to have to go to hospital but managed to get up etc so resting, Not happy at all as just dont seem to be able to get ontop of this at all.
Comments
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Sorry you're feeling so bad. I'm sending you a big hug and prayers for a better day tomorrow - I have days that are horrible and live on pain killers, too. Any possiblity of upping on meds for the spasms? I feel so bad for you, this really SUCKS. Just needed you to know I'm thinking of you. : )
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thought to borrow so,me good body parts from u for me but nah we both the samei use electric blanket single one hon works a lot for the pain darling
Hi, I am still in pain from the lumbar puncture. Went back to the hospital on Monday & they said very bruised & infected & a small bledd at site but the Dr didnt do anything. Said go home & rest & take panadol rather than panadeine forte to fight the pain level. HUH this didnt make sense, tried it & to add to the migrianes, headaches, back pain shooting up & down, cramos spasms I then got real bad nausea & couldnt eat or drink much at all.
Didnt bother going back to the hospital as they probably wouldnt have done anything anyway.
I have tomorrow (Friday) off so got 3 days to rest. Not the best way to spend the weekend but whats new.
Thanks for reading.
Sue
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Prayers for relief of your pain. I certainly understand what you're going through. I have occasional times when I DON'T have pain but they are too far inbetween. I would definitely like to know if the orthotics help you! I have an AFO for foot drop - and it helps me walk better along with my cane. The mention you made of the other side of the board and the posts I agree with - sometimes I have to just stay away from there because it just causes too much stress for me. You have to do what's right for you.
Best wishes for a better tomorrow!!! Christine
mchristine
SUE,
I SURE HOPE THE DOCTOR'S CAN HELP YOU.I HAVE CRONIC
BACK PAIN WITH SPASTISITY.MY LEG'S GET THE TREMOR'S
WHEN THEY'RE REALLY TIRED.BACLOFEN IS GOOD FOR THAT.
I'M ALERGIC TO IT SO I TAKE VALIUM.HELP'S TREMORS,SPASTICITY AND ANXIETY AT THE SAME TIME.I'M NOT
A PILL PUSHER,BUT GOSH WE HAVE TO BE ABLE TO FUNCTION
SOME OF THE TIME WITHOUT THESE SYMPTOM'S CONSTANTLY
ACTING UP.I'M GLAD YOU'RE GOING TO SEE THE DR.
HAVE YOU HAD THESE SYMPTOM'S FOR A LONG TIME.
I HEAR YA ABOUT THE POST'S,I DON'T GO THERE THAT
OFTEN.WISHING YOU ALL THE BEST.DIANE
momf33
Thanks for your comments. I am already on 100mg (4x25mg) baclofen a day & calium at night as well as heaps of other meds. My back has only been spasming since lumbar puncture last month & same with right leg, that is usually my good one now spasm & pain a lot.
Just to top things off my hubby was in a car accident. He is ok but someone hit the rear of our car. Just hope he doesnt have any effects later.
Hugs, Sue
AusSue
Yes Baclofen...I think sometimes I need to be on this too. I am on Copaxone though. Remember when we get colds and infections it takes up longer to recover and we really feel bad. Be good to your body and take it easy. Hang in there.
kittykay