today, lumbar puncture & eye tests
July 22, 2008 7:56am
had a full on day at the hospital. Started off when I rang there to confirm everything found that I should have been in there by 11 not 1pm so …
AusSue’s Profile
-
About Me
I am 46, live in outer Melbourne. I work 3 days a week in the city for 5 hours which is all I can manage. I was dx in October 2005 & put on betaferon immediately & reacted then on Avonex & reacted again so off that. Was on a drug trial but got taken off that. Currently on no medication. Have been in & out of hospital too many times with several doses of methylpred. Now using a walker permananetly & a scooter when outside & to get to work & out etc. Each flare up leaves me worse than before.
Interests
I enjoy going awy on our caravan as much as we can. I read novels of a variety of sorts, maily light reading due to concentration problems. Sometimes I do some crocheting & latch hook rugs or cushions. I also have a web page with all my photos & my story on it. It is on msn so please visit my page on msn for poems & my story. http://pennysue1961.spaces.msn.com/
-
Recent Activity
Tuesday
-
AusSue commented on kate46’s journal entry LAZY DAY 8:19am
Glad you had a lazy day. Dont forget to write down everything if you havent already for the medical board…
-
AusSue commented on kate46’s journal entry hello my friends 8:16am
Thinking of you & hoping that you get elief from pain.…
-
AusSue gave DaveC a Hug 8:12am
Thanks Dave, Have updated my journal about tody. Have had better days.…
-
AusSue wrote a journal entry: today, lumbar puncture & eye tests 7:56am
had a full on day at the hospital. Started off when I rang there to confirm everything found that I should…
-
AusSue changed their mood to Horrible 7:55am
-
-
Journal
-
-
Lumbar puncture tomorrow
July 21, 2008 10:02am
Hi everyone,
I got a letter today when I got home from work telling me that my lumbar puncture/spinal tap is booked in for tomorrow, notmuch notice. I …
This entry is private
-
Had enough
June 11, 2008 4:52am
I am still struggling with all the same crap that I wrote about before & getting so fed up its beyond. I feel like I am just surviving & not …
-
Not happy
June 1, 2008 4:24am
Hi everyone,
I have been on cortisone for 5 days from my local Dr as having more of a flare up & struggling. Could barely walk & talking was …
-
-
Hugbook
Hug
You're... My friend, My companion, Through good times and bad, My friend, My buddy, Through happy and sad, Beside me you stand, Beside me you walk, You're there to listen, You' re there to talk, With happiness, With smiles, With pain and tears, I know you'll be there, throughout the years! You are all good friends to me and I a am grateful to you. Send this to all your good friends online to show them you are friends. If you get this back from: 1 person - you are lonely 2 people - you have a couple friends, but not many 3 people - you have a few friends... 4 people - you have some friends... 5 people - you have several friends!! 6 people - you have many friends!! 7 people - you are SOOOO loved!!!
-
Hug
Hey! I hope everything went well for you today. Get some rest and take things easy. Big HUGS! David
-
Hug
You are my friend and I hope you know that's true. No matter what happens I will stand by you. I'll be there for you whenever you need. To lend you a hand to do a good deed. So just call on me when you need me my friend. I will always be there even to the end. Forward this promise to all your friends to show your friendship and watch who sends it back.
-
Prayer
When the storms hits and the clouds darken your mood know, that i will be there with my light When hurt and sadness prevail, know that i will say a prayer when you are crying and feel alone turn to the light and you will see me standing there when you are hurt and feel like nothing can heal you Know that i send love, light, peace and serenity to help you find a place of saftey. I am blessed because i have you in my life, thank you for loving me and in return i can offer you love, friendship and my hand to pull you thru the storm. godbless
-
Hug
You are my friend and I hope you know that's true. No matter what happens I will stand by you. I'll be there for you whenever you need. To lend you a hand to do a good deed. So just call on me when you need me my friend. I will always be there even to the end.
-
Photos
AusSue hasn’t uploaded any photos yet
-
-
Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI was dx in October 2005 after lots of tests & had no idea that was what they were testing me for so was in shock. Told Husband & a few cose friends then & a week later told parents. In November 2005 Dad had a stroke & passed away in December & then I had a major flare up in February 2006. Don't think I had a chance to take in what it meant to it. It took months with rehab to get over the flare up & have had more since. I am now use walker/scooter to get about Love caravanning & work 3 days.
Treatments
- Avonex Not Working
- Off it now as my body wouldnt tolerate it
- Baclofen Working / Worked
- On 4x25mg a day to control spasms & cramps. Works well at that level
- Beta Interferon Not Working
- Off it now as my body wouldnt tolerate it
- Physical Therapy Working / Worked
- Aim to go 2 times a week & it helps to maintain what strength I have left
- Prednisone Working / Worked
- I am back on it for a few days as having a flare caused by the heat. Always get hungry, hypo at times, & put on more weight
-
Groups
-
Snapshot
Recently …
- 1 hug given
- 3 hugs received
- 2 journal posts
- 2 journal comments
