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Journal Entry for August 12, 2007 Mood
Sunday, August 12, 2007
Sorry everyone I have been traveling the last couple of months. So I have had no time to get on here and talk. Just been enjoying life and seeing the world.
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  1. lorna

    hey that is so awesome good for you. missed ya was worried about ya. glad your ok!!!{{{HUGS}}}}lorna


    lorna

  2. Joanne

    More power to you! I hope you enjoyed it.


    Joanne

  3. Joanne

    And that you took a lot of pictures!


    Joanne

  4. AngieS

    Hope you had a great time..Wish I could get out and enjoy the world...Someday..when the kids are grown..Take care!


    AngieS

Journal Entry for March 8, 2007 Mood
Thursday, March 8, 2007
Just got back from the docs today they started me on soome treatments I guess I' ll be taking Avonex, Provigil and Neurontin. I really hope this shit works so I can get back to work and life. If and one has been on avonex please tell me what ya think.
Thanks all
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  1. lorna

    GOOD LUCK, I WAS ON IT AND HAD A TERRIBLE ALLERGIC REACTION TO IT ALMOST KILLED ME, BAD HIVES INSIDE AND OUT. JUST BE CAUTOIUS, THERE IS A WARNING ABOUT IT. NOT EVERYONE HAS THE SAME REACTION. YOU MIGHT BE JUST FINE. KEEP SMILING:)


    lorna

  2. jarcher36

    good luck on ya treatments everyones body reacts different to every drug i was on avonex when i was first DX in 2002 had too many side effects was taken off now on beterseron and having side effects and they taken me off that so just keep ya chin up and keep in touch


    jarcher36

  3. kerrib

    avonex and me did not quite get along...I would take it friday night, and the "flu like symptoms" yeah ummm they wiped me out till Sunday! It took my body just so long to recover from the injection. I would cry over how bad it made me feel. My fever would get really high and I was shaking, the chills you name it...basically its like the worst flu you've ever had But you have it every week...! I do know that some people tolerate it much much better than I did, so I hope it works out for you. Provigil has some weird side effects so i would do reasearch on that too. hope everything works out for you! :)


    kerrib

  4. Joanne

    Avonex could really work for your active lifestyle since you only have to do it once a week. You may feel crappy the next day for a while as your body adjusts to it, so build yourself up to full dosage. Another trick that really worked like a charm was to make sure you are hydrated at injection time. It makes the flu-like symptoms less severe.


    Joanne

  5. misha

    I was on Avonex for one year, took it fri night and would have fever, chills, night sweats, and throbbing pain all over my body for about 24 hours, it would take me till Sunday night to recooperate. Got sick of giving up my weekends so then I went on Copaxone for a year, no flu like symptoms but incision site was large red painful lumps and ran out of places to poke my self everyday and be able to cover them. So I am going back to the doc and probably try something else. Good luck and just be careful till you know how you react to your shots.


    misha

  6. Hats007

    Some weeks are better than others for me w/avonex. I agree with joanne that being well hydrated really helps.

    Neurontin relly helpswith the pain/spacisity for me. It was a huge relief for me! I've never been on Provigil (is that for fatigue?) I might try b/c my energy level is low and I have heard good things about it.


    Hats007

  7. kittykay

    I am starting Copaxone hopefully soon. I was thinking about you so I popped by. I think these meds will help you.


    kittykay

Journal Entry for March 5, 2007 Mood
Monday, March 5, 2007
Dose any one else have pain just all the time?
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  1. kittykay

    Yes I do, I have been on 3 rounds of IV steroids because I got real bad. I got one morning of no pain. IT really mademe realise how much pain I am always in. SO yes, I am along your side with on going pain. Hang in there, you are not alone.


    kittykay

  2. nay75az

    i SUFFER FROM CONSTANT.SINCE MY dx IN JULY 04 I HAVE HAS A BURNING SENSATION IN MY ARMS AND TORSO. I HAVE BEEN ON NARCOTIC PAIN MEDS FOR 2 YEARS AND NOTHING REALLY SEEMS TO HELP. MY DAYS ARE SPENT TRYING TO CONTROLL THE PAIN. YOU ARE NOT ALONE HERE....


    nay75az

  3. Sherie

    I have been in constant pain in my lower back and hips for years. They can't seem to find one single thing wrong with me! Frustrating. I usually take two naproxin and 1 baclafen and it eases it for awhile. I have to take 2 bacs at night. Wish I had some anwsers for you!


    Sherie


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