heidibronte’s Profile
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heidibronte
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About Me
Hi, my name is Heidi. I am not here for myself. It is my fiance, Burton,who is dying literally before my eyes. I'm a writer/editor, Burton used to run a few bars in LA. He is on disabilty, and if he's not in bed, he's in the hospital which don't give him proper care. It is my passion and love for Burton to stop his pain, his crying, his life wasting away...
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I’m With You
I am so sorry and totally feel his pain! Mine i don't think is that bad at all but when i have an attack its prob the worst pain anyone can bare! It took 2 years to figure it out with me and all i have to do now is drink sugar and a sports drink and slowly it gets better. When before i was ending up in emergency rooms and there they had no idea what was happening to me but thought i had ulcers. Its a hard disease to diagnose and am so glad they figured it out b/c it is so very very debilitating. My heart goes out to him!
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Close Porphyria
Type: Hereditary Coproporphyria (HCP)Hi, my name is Heidi, but i'm here for my fiance, Burton. He is so sick and in agonizing pain he cries every day. Burton was diagnosed at 20yrs old. He coped with it well. He used to work for a new's station, co-produce films and own several bars. He's now 36yrs. old, and if he's not in bed, he's at very unhelpful hospitals that don't unstand what porphria is. I want to find him relief and will spend the rest of my life looking for him. It's killing me, absolutely killing me to see him suffer.
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