TX stopped
June 12, 2008 8:53am
My test results for week 12 of TX did not come back favorable, my viral load is still detectable and the doctor wants to extend treatment from 48 …
Dave1358’s Profile
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About Me
Married to a very caring special woman. Architect by profession specializing in handicapped accessibility design.
Interests
Enjoying my Harley Wide Glide, historical buildings, film photograpy of nature and home renovation.
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Recent Activity
Today
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Dave1358 turned 50 12:00am
Yesterday
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Dave1358 gave FlyingMonkey Flowers 10:01am
As long as the weather good I am going, Marlene may not end up going…
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Dave1358 gave FlyingMonkey Flowers 9:53am
A big hug and flowers for you's my friend…
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Dave1358 gave joan49 Flowers 8:51am
Hi there, how are you doing. Screwed up my back somehow on Sunday so off to doc for some muscel relaxers.…
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Dave1358 wrote a discussion post in the Hepatitis C support group: A little Comedy for ya all 8:33am
The Moped An elderly man on a Moped, Looking about 100 years old, Pulls up next to a doctor at a street…
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Journal
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Emotional walls
May 13, 2008 9:01am
June 1st will be my day to face a emotional challenge that I’ve buried since …
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I'm back I think
May 3, 2008 12:31pm
Were do you start, after ten days of hell with the neuprogen shots my WBC’s rose to normal levels and went back to just minor side’s from …
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Just a real bad week
April 15, 2008 6:56am
This last week has been the worst yet, that neuprogen shit for my low white blood …
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Hugbook
I’m With You
Dave!! YOU ROCK!!! Pam
Hug
Hey there bro! hows it goin? hope ur all good! =D
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Hug
Right back atcha - you won't believe this but had dream about you and Tattman last night. He was loading up bike prepping for trip to Montana. I told him it was a shame that you couldn't make trip and he said hell yea he is going - we're gonna have a blast. How weird is that...guess I was just thinking about your bike trip and hoping ya could make it. xoxox
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Hug
Good morning Dave!!!
Hug
love your backyard..umm are fireflies really like what you see in the movies? we dont get them here! i kinda remember seeing them once i think when i was living in baxley georgia south carolina or was it north..always get them mixed up! i was 11 so where i lived didnt really concern me too much as long as i had my lucky charms cereal i was happy..and you cant buy that in Aus either :( lindsay loves your designs and says your have a beautiful garden...i wanted to show him a better pic of marlene but she was gone! hope your backs ok...shag back ache?
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Photos
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Support Groups
Close Epilepsy & Seizures
Grand Mal seizures, mostly under control with lamictal
Treatments
- Lamictal Working / Worked
Close Heart Failure
Congenital heart disease as a kid and young adult has now progressed to failure. No treatment, no med's, nothing at this time to stop it.
Open Stroke
Stroke in 1999 while working on a ladder, possibly caused by a blood clot. Lost some audio perception and memory but overall consider myself lucky
Open Porphyria
Type: Porphyria Cutanea Tarda (PCT)Diagnosed with PCT in 89 most likly triggered by Hep C
Treatments
- Phlebotomy Somewhat Helpful
- Used to do 4 or 5 and would mostly clear up. Last time 10 and did not work. Can not take chloroquine due to Hep C
Open Congenital Heart Disease
Type: Atrial or Ventricular Septal Defect (ASD / VSD)Somewhat sucessful open heart surgery in 1969, repaired hole and tried to repair mitral valve, now need to have open heart surgery again to replace mitral valve but nothing they can do about the congenital heat failure
Open Hepatitis C
Did not respond favorably to treatment, decided to stop with still detectable viral load at week 12
Treatments
- Ribavarin Not Working
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Groups
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Snapshot
Recently …
- 28 hugs given
- 28 hugs received
- 4 photo uploads
- 1 discussion post
- 2 journal comments
