TexasSusan’s Profile
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TexasSusan
is feeling OK
Decided I am fine considering the alternatives! my plate was full.
About Me
I have to establish a ROUTINE. Doesn't sound difficult but it is! After having worked 32 years with that routine fixed in stone, I need help. I feel like a fish floundering on land! I'm close friends with those little autoimmune friends of ours; so be it. But as a very close friend of mine, Mr. Ralph Waldo Emerson, once said, I keep reminding myself that "No matter what lies in front or behind us, it makes no difference at all compared to that which is within us".
Interests
music, reading, cooking, figure skating competition, sports, writing, people in all arenas and pets. Taping music for meditation and mind imaging which I use for pain management and/or relaxation. Working on cognitive skills following TIA's and comas.
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Recent Activity
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Journal
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Hugbook
Flower
Hi my friend!Thank you for the hug.Hope you have a great weekend.Sending some flowers and a smile with this hug!Take care of you!Lesa
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Hug
Hugs to my friend!
Hug
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I’m With You
Dear Susan, Please forgive my relay in responding. How did you last visit with your pain specialist turn out? Mid July I was having an especially painful time, I saw my physician and she upped my morphine and added flexeril. Since that change I am in much less pain. It is my pattern to do better when my morphine is increased. I am grateful for the relief. I thoughts are with you, how are you doing?
Hug
Hey kiddo, Sorry I was out of commission on your birthday...Happy a lil late birthday. I figure everyone we get, the more grateful we should be! Thanks for the journal comment. Just want to give praise to our awesome heavenly Father. He has blessed and favored me so many times. I pray that He does the same for you, in Jesus mighty name. Amen
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Photos
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Support Groups
Close Fibromyalgia
fibro for approx 40 yrs, diagnosed 15 yrs; could write forever and still not cover all of it as all fibro persons know. It masked a lot of problems; i.e., sjogren's syndrome, connective tissue disease, chronic fatigue syndrome. Have to be one to know one, so to speak.....
Treatments
- Duragesic Patch Considering
- my pain specialist told me my Duragesic patch is for the pain due to 4 failed back surgeries and not for fibro. However, she did prescribe Zanaflex, which is a muscle relaxant, which she stated is used for fibro and she has several patients who have benefitted from it. I am one of those patients.
- Acupuncture Working / Worked
- acupuncture helped but needed it five times a week and not coverd by insurance and couldn't afford it.
- Duragesic Patch Working / Worked
- This helps me as I am tremendously reactive to all medication.
- Effexor Working / Worked
- Used for depression caused by light strokes, TIA's, for past 10 years.
- Elavil Working / Worked
- Works. Used for depression resulting from childhood abuse. Added benefit it helps with pain and sleep.
- Lyrica Working / Worked
- Added December 2007. IT IS HELPING ME A LOT...... HOPE THE SIDE AFFECTS DON'T OVERRIDE THE BENEFITS.
- TENS Working / Worked
- Helps with pain in shoulder muscles.
- Vitamin B12 Working / Worked
- helps
- Zanaflex Working / Worked
- helps
Close Back Pain
rupt.disk,collapsed spine,lamenectomy,2post. fusions, one anterior fusions, iron braces and anterior started at bottom of stomach and incision to top of right shoulder, collapsed lung, took out rib, cut up, went thru stomach,placed in spine in different places, stapled me shut 34 days, comatose, then sent home full body cast 9 months. Injuries result of beating 1973. Live with pain 24/7 since then... paralyzed twice. 2 comas. That last surg messed up everything in body; they don't do it now.
Treatments
- Acupuncture Working / Worked
- helped, but needed it daily.
- Cortisone (Injection) Not Working
- can't use steroids for anything; including all autoimmune diseases with inflammatory problems. back surg & motrin left me with a total of 11 ulcers. close call. (again)
- Darvon Not Working
- didn't help.
- Epidural Injection Not Working
- didn't help.
- Fentanyl Working / Worked
- Fentanyl is in my duragesic patch. it is only 25 mg strength but docs are afraid to give me enough to help a lot. (due to comas, etc)
- Hydrocodone Working / Worked
- helped - but don't use anything with patch.
- Ibuprofen Not Working
- can't use
- Physical Therapy Not Working
- can only use a "feel better" massage as opposed to a diagnostic or healing massage......
- TENS Somewhat Helpful
- It helps some - can't use on a regular basis. couple times weekly.
- Zonegran Working / Worked
- similar to Neurontin - helps some with nerve pain due to scar tissue on nerve endings.......
- Prayer Working / Worked
- Always helps.
- Duragesic Patch Working / Worked
- My duragesic patch is helpful for my back pain. My doc told me it would help but not eliminate. So I use it along with meditation, relaxation tapes, etc., and it does make a tremendous difference.
Open Depression Supporters
incest survivor with all the depression and guilt and a death wish until I found the right doctor.
Treatments
- Psychotherapy Working / Worked
- Hard work, very painful, night terrors, suicidal, depressed with feelings of hopelessness. Didn't have good docs to start with.
- Psychotherapy Working / Worked
- Bad exp.w/first doc. Current Dr. true to Hippocratic oath. He was Available 24/7 when needed. After many yrs of hard work we meet once a month regarding my health now.
- Elavil Working / Worked
- Elavil is oldest antidepressant & has worst side effects however it makes the chemical changes in my brain. It also helps with pain management. Tried others; very bad results.
- Effexor Working / Worked
- added after I started the TIA's (light strokes). Help the depression caused by strokes; doesn't prevent them. Doc's don't know what causes them.
- Meditation Working / Worked
- Various forms of audio and subliminal meditation & relaxation techniques thru music. At times, this is the only way to obtain any relief whatsoever.
Open Chronic Pain
Aug 4,1973 was last day/last minute without pain. Was brutally beaten w/pipes, brassknuckles, stomped with boots, left for dead. but was and am A STUBBORN REDHEAD!!
Finally made it back to work fulltime. 13 surgeries/47 hospital stays. Worked until 1990. Now disabled, housebound, depressed. For the lemonade, totally love God and He keeps my heart filled with loveand a great sense of humor. Love and need my friends. Happy helping others. Treatments
- Hydrocodone Working / Worked
- Helped. Now use Duragesic fentynl 25 mg patch after pain doc RX's too much morphine and put me in a coma.
- Psychotherapy Working / Worked
- Great doctor, mentor and trusted friend. Am incest survivor and my doctor taught me trust (again) and faith within myself.
Open Anxiety
Last day without constant pain was August 4, 1973. So pain 24/7 adds anxiety 24/7 and that starts the merry-go-round. My greatest hope now is to be able to establish a ROUTINE. It doesn't help that I am married to a retired military person who can schedule everything up to a BM!!! LOL... After 32 years on working with a built-in routine in stone, I need your support in establishing a ROUTINE. Take care and God bless.
Treatments
- Acupuncture Working / Worked
- HAVE TO COMPLETE INFO LATER. HAVE AN APPT. TO KEEP AND CAN'T BE LATE!!!
- Breathing Exercises Working / Worked
- Meditation Working / Worked
- Xanax Working / Worked
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Snapshot
TexasSusan hasn’t been active on the site in a while. Why not give TexasSusan a hug?
