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    About Me

    I am a 39 year old single woman with NF1. I work in a dementia unit of a nursing home. I also take care of my father who had his leg amputated 3 years ago!! I would love to share experiences, facts, advice or just talk.

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    September 23

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      From igloogirl December 11, 2007

      welcome, if you want to chat anytime i am here.

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  • Support Groups

    • Close Neurofibromatosis

      I am a 39 year old single woman with NF1. I am a state tested nurse aide in a dementia unit of a nursing home. I also take care of my father who had a below knee amputation of his left leg three years ago. I would love to talk with people with simular situations. I have had two surgeries this year in chicago ill with Dr. Mckay Mckinnon. my surgeries were to remove nf's from my hands(both), my back and my trunk.

      Treatments

      Surgery Working / Worked
      Very positive I am very hopefulcrossinf my fingers and toes and praying that they DO NOT GROW BACK!!!
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