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Just a note to keep my friends updated. I amstill feeling lousy,s orry to say. Today I saw my neuro and I was started again on IV solumedrol. So I am stilon oral steroids 80mg Prdisone everyo other day and Florinef 0.1mg the oppisite day. I will be going for at least 2 more days for Iv solumedrol and will be slowly tapering off to 20 mg maint pred and remaining there with the florinef the oppis day,f or awhile. Let's pray my veins & BP hold out this time!
They changed all of my meds around its been tough tring to get usce to thet changes. But i am haning in there and I really appreciate all of your thoughts and messages. You really do help me I want you to know that.
I am pushing through and really tring to keep my spirits high. I just dont have to much energ y rignt now for anything other than getting up taking my meds, eating, bathing, doctors appts, trying to sleep again, its nuts! LOL
I miss our jokes and laughter and I love to read your funny stories to one another. I pray you are all doing well. Much love, Melissa
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I am still having such a bad time. They couldnt get any veins on Saturday for my IV. They tried in several locations. OUCH!!! Finally they just sent me home with a prescription for prednisone. So, there goes the solumedrol treatment....
My doctor is going to speak to my neuro and they are going to come up with another plan. I was supposed to start on a new steroid yesterday but the pharmacy closed before we got there. So, I'll start it today. woohoo!!! I will be alternating every other day between this one and the prednisone. I can't remember just now the name of it, I'll post it up when I do.
My blood pressure is waaaaaaaaaaaaaaaaaaaaay to low. So, that is another problem all together making the whole medication mess even worse. Friday my BP was 98/60 then Saturday it was 74/52, then on Sunday the nurse couldn't even get one, it was so low. Thats when they couldn't get any veins.
I am so weak and so tired. The doc changed up all my meds. Ugggghhhh but I started the changes yesterday and it knocked me out for the day and I slept through the night. Which I needed really bad!
Hopefully everything will start turning around soon. I am really getting tired....
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wow, you take care and rest up....one attempt at iv is nasty but more? ouchie. I had that 20yrs ago I was so black and blue from all the attempts I finally told them forget it, you cant do it then head nurse comes in and did it quite painfully.
the IV well, it all kinda shuts your body down, you will probly be more tired. Some say the pills amp you up. Not with me.
My hubby has super low blood pressure too, he uses ALOT of salt when he eats. Usually people say no salt, no he uses ALOT!! on everything.
take care and I feel ur pain!
hugsssssss
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Oh girl no wonder you are not feeling good with the blood pressure so low!!! Geesh that just robs you of all your energy. I struggle with it too and man I know what you are going through. Hope they can get that up a little for you. Sorry to hear about the steroids for I just got off them myself! Have you considered having a port put in.....one of those that stays in there? There will come a day when I will have to look into that myself. Have so much trouble with finding my veins too and when your blood pressure is low that means the veins are even smaller!
Oh I'm so praying hard for you my dear!!! Please just rest as much as you can. BIG HUGE HUGS ARE BEING SENT TO YOU!!!
XOXO
Dee
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Sorry your not feeling good, your BP would have scared me if you had been a patient of mine. Hope they get something worked out for you. Take care!
Peace............David
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Hi M, WOW, sorry to hear you are and have been going through so much. Sure hope you start feeling better and looking foward to one of your stashed snowballs. Take care, Hugs to you and yours, Sheryl
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i hope you feel better hun :( sorry about the IV treatment change to oral meds
is it methylprenisolone by any change the new steroid?
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sorry to hear you're being a pin cushion
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Hi LadyM I hope you froze some snowballs to put on your aches? I'm sorry that you are having a bad time, my Spring so far has been much less favorable healthwise than I had hoped. If I walk a bit for 2 days I am off my feet for 3 days. My shins feel like there shattering, its a stay at home bummer. Please Rest a bit! (turtle)
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Take care of yourself & I hope the oral steroids help you quickly. Take care with the low blood pressure too.
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Started another Solumedrol Iv treatmetn yesterday. Had to was feeling erally lousy.
Now I have a lung infection so I had to have a stupid antibiotic shot in my butt! Ouch
Then today my veins were completyel uncooperative so they gave me my solumedrol as an injection...guess where? So, when I go to lay down I cant even turn the other "cheek"!
Quite a week, 1st spinal tap, then all this this MS thing just keeps getting better and better! I think I'm over it! LOL
I am feeling worse not better. My chest is killing me, breathing is difficult.
I am sorry I havent been keeping up with everyone I am just to tired. Much love to all my friends, Love, M
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aww that is ok :) you just get yourself better! Sorry about all the booty shots :( Get better hun :) how is miss scout?
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take care sweetheart...it is just soooo TUFF to feel like this, take care if you possibly can....you will pick up again, I know it, because you always do, you brave lady......lots of love Cathrynn X
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You just rest your little pretty head sweetie and don't worry about keeping up with everyone. This is the time we are here for you. Geesh I hate that you are having to go through all this and I will keep you in my prayers. God bless you and may he watch over you. Hang in there and we love ya!!
XOXO
Dee
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good luck :)
LarryLDN
I'm saying a prayer for you. Take care!
Peace...........David
DaveC
Hope the medications work for you & you get some relief as well as some answers to everything else you are going through.
Hugs, Sue
AusSue
Thinking of you and wishing you all the best, you have been missed! Take care of you and feel better soon!!!
Hugs,
Michelle
sunshine521
I just want you to get better!!! :D
Love to You.
Bec xxxx
labelleindifference
Girlfriend, I'm so sorry you are still feeling crappy. You hang in there and keep that smile on your beautiful face. How's your new puppy?
love ya and miss ya, Marti
GrammieP
I have my fingers crossed for you and oodles of virtual hugs headed your way. Hang in there!
Char52
Hope everything starts turning around. Changing meds around always messes things up. Like yesterday forgot to take mine and didn't fall asleep until 5 am and that is just one day. I'm praying for you!
LisaJoM
i hope these new meds work for ya hun and knw ure not alone and are in our prayers :) ure an inspiration to us all as u push fwrd thru the pain :) thank you for bein here for and with all us and i wish u all the best and hope u get to feelin better hun :) ---KareN
KsHOrTy
We need to be well in ME. Positive thoughts your way. Hugs Holly
Phooeymom
Hang in there;] better days are ahead. Its so hard to stay positive when your feeling like poo. I dont have any snow balls (im in Texas and its hotter than heck)but im throwin big hugs your way;)Tiff
cozybynite
HANG IN THERE. YOU ARE IN MY THOUGHTS AND PRAYERS. BETTER DAYS ARE AHEAD.
ROB2211