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I am waiting with great anticipation my appointment tomorrow for the saco-iliac joint injections. Although I am really anxious and nervous about them, I am hopeful that I will have some pain relief. Saw the doc on monday and had my pain med increased. Although not as effective as I wished, I was able to make it through the week with work. A big triumph. It is tough to be in so much pain and not be able to sleep and still be expected to function. It has negatively impacted my ability to exercise so . . . . I am hoping that after tomorrow I will get a bit of relief for at least a few days.
UPDATED GOALS
Take care of myself
Progress 10%
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My husband is doing better. Almost back to his old self with the exception of his sleep being disjointed. I went to a pain management doctor last wednesday, for the first time in a long time I felt a glimmer of hope. Friday I changed my pain med and by yesterday I am in nearly screaming agony. Pain management or pain mismanagement. Today I will call on my own behalf and see what I should do. I cannot continue like this until my next appointment. I have to be able to move and to get around at least minimally so that I can work.
Wheel (hubby) woke up early, was going to take me to work, now he is back in bed. We need another car but he isn't able to move fast enough to get anything done. I don't know what I am going to do. Start with calling my pain management doc. IF this is some sort of a joke, it is not funny.
A little over two weeks ago my husband, age 59 underwent a pacemaker / ICD procedure that lasted about 4 hours. He spent 1 day in the hospital, return the next, seemed OK the following day, then started complaining of headache, went to bed for several days, started falling on the following monday night. I was so scared. And of course made him go to the hospital. He spent one night in the hospital, was very angry, confused, felt I had betrayed him because I couldn't just let him fall and fall. He has been home for a few days. I have come to the point where I realize it is caused from one of his meds for Neuropathy. Yesterday he was fine, then took his pills, speech became slirred, staggering gait, some of what he said was from wacky world. I convinced him no neurontin at all, if his pain comes back we will call the doctor. It is so sad to see someone you love deterioriate in front of your eyes. I have spent the past week crying, and I am not a cryer. Never been so scared in my entire life.
Comments
Sadness,
Thanks for the message. I am not sure which one is harder knowing that your husband is going to die or not knowing. My husband would not have wanted me to take care of him even when he was sick he would not let me stay home and wait on him. So I thank god took him fast. It it so hard I don't think one way is better than the other. Bruce and I loved each other very much but I did not get to say good by and tell him what he was to me in my life I am sure he knows but it would have been good to hold him and tell him, he was my everything, life now is just life with him I was living life now I just make it through one day at a time and do the best I can for that day. I have never been a cryer now I cry almost daily some days are better than others.I am here for you if you need a friend.
God Bless you,
Susan
sadwithouthim
I'm so sorry for your pain and his. You're both in my thoughts and prayers.
jenmcd
Oh dear this is so sad. i will say a prayer for you both. Is there a caregiver support group near you?
scaredgirl
Poor you, I hope your Dad go thru this critical time.
HAving a pace maker installed is one hell of a surgery, why is he at home so early.
He should be taking care by medical staff, not just shipped at home.
Damn insurance hey?
I hope your ok today, how is he?
It's hard to be a caregiver, you need to be very strong, and patient, I will pray that you get the energy to do this for him.
Good luck Mckenzie one day at the time
Mckenzie