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  • Image of tonja

    About Me

    just diagnosed last year-alot to take in that was jan 2007

    Interests

    i have a 14 year old daughter and a pug-shes just like havin a second child

  • Recent Activity

    July 13

    • tonja gave MSforKF an I'm with you 8:40pm

      its a hard thing to get used to this disease but in time it will seem a little easier to accept just…  

    June 15

  • Journal

    • Journal Entry for March 7, 2008

      Mood March 7, 2008 12:17pm

      did #2 chemo treatment-am not feelin any benefit yet acually i feel pretty ill afterwards.it seems to mess up my stomach pretty good.aint much else …
    • Journal Entry for February 10, 2008

      Mood February 10, 2008 11:51am

       

      did my first chemo treatment on tues-wasnt so bad  just long like 3 hrs.sucks legs are barely working.how many treatments shall i do …

    • Journal Entry for January 25, 2008

      Mood January 25, 2008 2:56pm

      can no longer do tysabri.body fought it off built up antribodies.gonna switch me to a low dose chema-cytoxan??anyone on this??now that al meds are …
    • Journal Entry for January 1, 2008

      Mood January 1, 2008 7:17pm

      still waiting on decision if they will let me continue tysabri-i think my doc is ok with it not sure about the one at infusion center.called med …
    • Journal Entry for December 22, 2007

      Mood December 22, 2007 11:52am

      i need input on this - i had my second infusion of tysabri and last 5 min got some side effects-hives and chills they cancled my next appt and said i …

    Read Journal

  • Hugbook

    Give tonja a hug

    • I’m With You

      From MSWildcat April 24

      Glad to meet you.

    • Hug

      From pulty April 22

      Hi Tonya, just wanted to send you a huge hug. Thank you for welcoming me into the site.

    • Hug

      From muc7452 April 22

      Hi Tonya, How are you doing? I know we havent talked in awhile and was wondering how your doing on your new medication. I think of you all the time. Give me a call when your feeling up to chatting. (((BIG HUGS))) and LOL for you!!!xxxooo

    • I’m With You

      From shashonie March 29

      Thank you. Had a very hard night and morning and am hoping it will soon get better. At least a good nights rest would be welcomed.

    • Hug

      From muc7452 February 23

      Hi Tonya, How are you doing? Call me sometime when your feeling up to it. I would love to talk to you. When its a good time for you okay.. How are you doing on the new medication? I think about you all the time and my prayers are with you. LOL dear friend..Mary :-)

    Read Hugbook

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Seconday Progressive MS

      they had said relapsin-remitten-diagnosed feb 2007 -feel free to call 860-779-2595 eves-now im like someknd of aggressive progressive-copaxone didnt work on tysabri now-was allergic had to quit onto cytoxin

      Treatments

      Baclofen Somewhat Helpful
      helps some
      Copaxone Not Working
      didnt work gained 5 liesons in 7 or 8 months of use
      Cytoxan Too Soon to Tell
      had one dose so far
      Solumedrol Not Working
      done it 2 times now in between meds dorsnt help
      Tysabri Not Working
      was working but built up antibodies-body rejected it cant do anymore after 2
  • Friends

  • Snapshot

    tonja hasn’t been active on the site in a while. Why not give tonja a hug?

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