Journal Entry for August 20, 2008
Went to Dr. today, basically not much to do to help me. Whatever began these dredful illnesses apparently cannot be stopped. Medical science …
I am new to the computer and internet. I became disabled by CFS at the age of 24, diagnosed with fibromyalgia in 1994. It is only by the grace of God that I live and breathe , and He has sustained me. I "roll with the punches" of this illness and am the caregiver of two other loved ones. I encourage all those who suffer with any disease to research their illness and be as informed as possible so that they may be their own advocate.
I have many interests, some of which are severely limited by mobility and pain factors. Fishing(I can successfully fall uphill), metal detecting, beading, jewelry and wreath making, crafts of all kinds, cooking, contemporary Christian music, singing, playing the guitar, thrift stores, animal/bird rescue, puzzles, reading, writing, Playstation 2 (especially the Need for Speed series), apologetics , Bible study, and my close personal relationship with the Lord Jesus Christ. I am very ecclectic and have many interests, many more than listed, and I am always willing to learn new things. Having as many health problems as I do makes it very difficult to enjoy or even attempt many of my interests.
12B4J gave mstamp12 a Hug 11:04pm
Hey, it's so good to hear from you! You sound so chipper as always. I pray you get some rain, without…
12B4J replied to their request for advice about WHY DOES YOUR JOURNAL ERASE! in the Fibromyalgia support group 12:58pm
SORRY for being so EMO. .. and thanks for the advice. I'm still a greenhorn when it comes to these things,…
12B4J asked for advice: WHY DOES YOUR JOURNAL ERASE! in the Fibromyalgia support group 2:58am
I AM GOING TO CRY! I JUST SPENT 2 HOURS WRITING IN MY JOURNAL AND I ACCIDENTALLY HIT BACKSPACE AND IT…
12B4J changed their mood to Bad 2:53am
12B4J replied to their discussion post Am I missing something here? in the Fibromyalgia support group 1:02am
Thank you everyone for responding. I have tried flexeril and neurontin to no avail. The doctor has submitted…
Went to Dr. today, basically not much to do to help me. Whatever began these dredful illnesses apparently cannot be stopped. Medical science …
EVERYONE PLEASE PRAY FOR US ALL. MY DAUGHTER IN LAW JUST WENT INTO LABOR . PLEASE PRAY FOR HER AND THE BABY AND FOR GOD TO STRENGTHEN ME ALSO, …
I don't know what to say. I am doing poorly and I know it , but I must press on. Grandbaby due on 8/16/08 , I am excited, please …
I am so tired, I'm just so t-i-r-e-d!!!
I have just moved. The place needs more work than I thought. The lady that sold it to us deceived us and broke one of our windows and left the …
Hi,, missed talking to you all. Am using son't laptop every now and then until mine is repaired. Know how u feel with fatigue and fibro. Developed all of that when i contracted lyme. How r u feeling now? really hope your doing ok. we're going to have nasty weather here tom nite and 'Sat from hannah. We do need the rain, but they can keep the wind-lol. God doesn't give us more than we can handle, even with lyme. Hugssssssssssssss1
thanks for your messages and hugs. there's a lot going on in my life right that has nothing to do with the post I wrote that day on CF. I can't worry about that for a while. there are so many things I need to take care of first
Have a blessed and pain free Sunday! HUGSSSSSSSSSSSSSSSSSSSSSSSSSS
Hi, sorry I haven't been on, my computer has a problem, less than a yr old. U can email me thru my daughter at tammy034@aol.com. She will keep me updated via phone til my computer is repaired. Wish there was something to help. I'm in the same boat, last week was bad, sick and my knees are getting worse. Take meds, but they don't cure, only help symptoms. Hang in there, and please keep in touch. Miss u!!
I reread the message you sent, and I wonder if we weren't separated at birth. We even are interested in the same things! Have a great weekend! (((HUGS)))
I believe that my fibromyalgia was triggered by a multitude of factors. An auto accident, stress and pneumonia and mononucleosis which I contracted while visiting my husband in the hospital. I was diagnosed by a rheumatologist in 1994,eight years after my symptoms first began. I firmly believe that it is by the grace of God that I am still alive. I thought I was losing my marbles! I was diagnosed with Chronic Fatigue Syndrome in 1989, the prelude to fibromyalgia.
In 1995, I was diagnosed with a mild mitral valve prolapse after I noticed that I would have bouts of a fast heartbeat. Today, after multiple monitors and tests, I have been diagnosed with sinus, atrial and ventricular tachychardias. I've multiple episodes of syncope and loss of consciousness, including in a dentists office. I can,t even have a tooth pulled without being in a hospital.
I began having acid reflux in early 2006 while being a caregiver to a disabled friend with breast cancer. I didn't really feel that it was much of a problem being that I was incapacitated already, until I repeatedly developed aspiration pneumonia. I recently had a chest x-ray for an upper respiratory infection at which time I was diagnosed with a hyatal hernia. I can only eat very small portions at a time and it still comes back up.
CFS was the beginning of every other health problem that I have had. I was a cashier when I developed mononucleosis and pneumonia. I tried to go back to work part time but I couldn't work set hours. I decided to start my own cleaning business in 1987 and after 6 months I CRASHED!!!! The fatigue, vertigo, pain and infections kept me bedridden and houseridden for the next 4 years. It was too agonizing to go anywhere or do anything. Rejected by family, I dust myself off and limp on!
I have suffered from tinnitus and benign positional vertigo since a auto accident in 1985. It was a foggy day and we were rear-ended, while sitting at a red light. He hit us going 40mph. Thank God for seatbelts, but the force of the impact broke the front seat off the floorboard and we ended up win the back seat with our legs over our head. The incessant high pitched ringing in my ears can drive me buggy, so I have to listen to something even at bedtime. Doctors tell me I have Meneirs disease.
I have suffered from chronic pain since 1986, beginning with CFS and moving to Fibromyalgia, it has been a challenge. At the time I became ill, it was common practice to send patients to the Psychiatrist. Social Security diagnosed me with somatoform disorder (all in my mind). I didn't start taking pain meds until 3 years ago when my blood pressure was too high and the cardiologist said I needed to get my pain under control or have a heart attack. I am in need of a good pain doctor.
I am a very ill caregiver to two people in my life. One has bipolar disorder, ADD, sleep apnea, restless leg syndrome, learning disabilities, etc. The other has firomyalgia, breast cancer, diabetes, severe cognitive impairment due to auto accidents (19 as a passenger). I am hurting and exhausted. They don't have anyone else to help them. They have been rejected because of their disabilities even as I have. I must prepare them in case my health deteriorates further and the Lord takes me home.
2003 gallbladder removed. I had 12 I.V. sites. After I went home I developed arm pain which I thought was fibromyalgia. E.R.>D.R.>ultrasound>hospital=I.V.in foot+Lovenox+warfarin+antibiotics because of D.V.T's in both arms. Sent home on meds, once INR 1.8, Lovenox removed. Clots from shoulders to wrists, one in right subclavian,one in foot. Started back on Lovenox=allergic reaction=BP 225/150=Prednisone+benadryl+ stop Lovenox= warfarin and prayer. GOD saved my life! 2006 Hysterectomy + Heparin
I developed vertigo after an auto accident(see tinnitus). Three months later I woke up with the room spinning fast! My friends carried me to the car and took me to the E.R. A specialist later ran water in my ear and I fell off the bed I was so dizzy. The next three years I slept in a recliner and could not lay flat.
I was just diagnosed with a hiatal hernia in October. It was seen on an x-ray for an upper respiratory infection. I spoke to the doctor about it at my follow up appointment but he pretty much ignored me. I have discomfort much of the time, trouble eating, nausea and reflux.
I began having problems when I was 4 years old with upset tummies. By the ripe old age of 5 I was hospitalized and the doctors performed a partial salpingo oopherectoy. My ovaries were the size of baseballs. They said it looked like a bunch of fluid filled sacks (cysts)in a casing with a stem like an apple! They saved one piece of my ovary and by the grace of God I had a son! I had constant cysts and pain,endometriosis etc. Hysterectomy in 2006, adhesions etc.
I had a wonderful doctor who discussed with me the reason for my many malladies. He said that nothing is ever easy for me because in order to get proper medical treatment, I needed to be transported to Area 51 where they study alien life forms. It is now a standing joke on me. My son gave me an alien drivers (flyers) license to top it all off. Doctors aren't God, and sometimes they don't have the answers. I'm trying to get this doctor back (insurance problems). Find a good supportive doctor!!
Please read my stories under tinnitus and vertigo.
I was touched, groped and molested by two people in my life who I should have been close to and trusted in. They were 2 of 3 in my life and they were all that I had. My mother had passed away when I was 6 years old. Shortly after that time alcohol and pornography openly came on the scene. To anyone who has ever been through such a devastating and demeaning, downright evil thing such as sexual abuse IT WAS NOT YOUR FAULT!!!!!
I am a caregiver to a loved one who is bipolar.
I have been married to a man who has bipolar,ADD, learning disabled etc. Deteriorating fast. Started with depression 25 years ago.
Interested in learning about Lymes disease.