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gailmorgan’s Profile

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    About Me

    mother of three.my 13 year old has charge. I dont have many friends but I wood love to have some one to talk to that will understand.

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    • Close CHARGE Syndrome

      my son was born13 years ago then they didinot no verey much about charge sydrom. they told me he had goldenhar but at the age of two I was told he had charge syndrom. he was verey sick as a baby he's had two nisans and may othere thing done to fix his ears and nose.he has had a gtube for 12 years and tetherd cord'hartproblemse lung and has behavour problems.

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