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shakennotstirred’s Profile

  • Image of shakennotstirred

    About Me

    I'm a 38yr old father of 4, aged 17yrs, 4yrs, 2yr & 9 months old & a Fiance I have been with for 7 years. Started getting a acidic smell & taste & a feel of Nausea for about 6 months then had a 6 Gran Mal seizures with in a 2yr time frame

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      From Jones57 July 4

      I hope that all goes well with your surgury *** I could never fatium getting 6 seizures in 2 yrs. For me getting 1 or 2 a yr. is the limit .

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      From suewongi November 25, 2007

      i am just waiting to go in for right temporal lobe surgery in the next few weeks the surgeon as told me quite a few things about the surgery but it still makes you scarred take care from susanx

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      From kc61 November 18, 2007

      Welcome to the Epilepsy Group!

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    • Close Epilepsy & Seizures

      I was diagnosed with Epilepsy 4 years ago.Have been through several types of medication but my body after so long builds an immunity to it. Specialist has put me on short list for Brain Surgery, very scared as i dont know much about this type of procedure, Extremely interested in talking to someone that has this surgery on their Right Temporal Lobe to see what the pros & cons are after surgery. The ins, the outs, the highs & the lows, any information would be sincerly apprecated..Thanks

      Treatments

      Depakote Not Working
      much the same result as tegratol, but also found myself to be very depressed
      Dilantin Not Working
      Allergic reaction
      Keppra Somewhat Helpful
      Partial seizures still coming through, but once again my body seems to be building an Immunity to it.Mood swings, nausea, stomach cramping,frequent bowel use .... on highest dosage 1500mg twice daily.
      Surgery, Brain Considering
      Last visit to spec.Dr Mark Parsons Australia... Was asked if I was Interested in surgery...I Freaked, but partial still getting through. Spoke with family, agreed with surgery. Now on waiting list. Spec said Topamax is last choice but wants to hold back in case surgery isn't sucessful
      Tegretol Not Working
      weird, built an immunity after 6 months, siezures returned + rapid weight loss +constant body jitters

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